Marfan Syndrome Support Group
Marfan syndrome is a connective tissue disorder characterized by unusually long limbs. The most serious conditions associated with Marfan syndrome primarily involve the cardiovascular system. Marfan syndrome may cause leakage of the mitral or aortic valves that control the flow of blood through the heart. This may produce shortness of breath, an irregular pulse, and undue...
Genetic & Metabolic
Marfan Syndrome Support Group

-
I have the long bones associated with Marfans, but not much else. I have the positive wrist sign (by quite a large... READ MORE
-
Hello, my name is Riley Smith, I'm 19 years old and I am a Marfan Syndrome suspect. I went to the doctors awhile back... READ MORE
-
Hi there. I have just joined as a member. just saying Hi and sharing my story. I am a Nutritionist and was diagnosed... READ MORE
-
Just looking for an opinion from someone who has the condition or someone knows a bit aboutI think I might have... READ MORE
-
Hello, I'm almost 7 weeks post op from an Aortic Dissection I was blindsided by & almost died from. My Cardiothoracic... READ MORE
-
Last week, I went for my annual aorta check. It's not normal anymore. I've always known I was at risk but there was... READ MORE
-
My mother unexpectedly passed away January 11, 2012 from heart complications related to her Marfans. She was 62, and... READ MORE
-
Hello everyone,This is my first time using a site like this so hopefully good results will come from it. I am a 22-year... READ MORE
-
being 6'7 and 130 lbs is a bit hard to find clothes... any thoughts about what i should do? im considering custom suits... READ MORE
-
My son has been diagnosed with Marfan's since he was approx. 15 yrs. old. He will soon be 20 yrs. old. My question is... READ MORE
-
Hello all, My son was diagnosed with Marfanoid type habitus, assuming Marfan Syndrome in lay terms. He has had a hard... READ MORE
-
I decided to create a few youtube videos for a few reasons. To demonstrate what the Social Security Administration... READ MORE
-
I'm new here, found out about a year ago did the research then but my eating/weight gaining has been a large goal of... READ MORE
-
I'm to skinny and pectus excavatum on my chest makes me not to take of my shirt...I am 21 and my weight is 106lbs with... READ MORE
-
Hi,I've just been researching Marfan's and related disorders for a short while now, and I haven't seen much on people... READ MORE