Hepatitis C Support Group

Hepatitis C is a blood-borne viral disease which can cause liver inflammation, fibrosis, cirrhosis and liver cancer. The hepatitis C virus (HCV) is spread by blood-to-blood contact with an infected person's blood. Many people with HCV infection have no symptoms and are unaware of the need to seek treatment. Hepatitis C infects an estimated 150-200 million people worldwide.

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deleted_user 05/05/2008

Well...I'm on my 5th shot as of this coming friday.I haven't been doing very well.My breathing is being affected, very forgetful....I do drink my water.At least as much as i can.
Run a feer alot.Mouth sores.Itchy ears.
My hep c doc called and said that my white blood cells are very low and that i have virtually no Vitamin D in my body!

So now I get another 2 shots beside my peggy shot
per week.(neupogen)

Is there others here who are on or have been on neupogen?I cold use some first had experiences
with this drug.

I dn't want to take more shots...I will if i have to tho.

it's hard enough hiding that i am on Tx.

Thank you all and God Bless you :)

Ru

deleted_user 05/05/2008

Hang in there Rudytrue, I don't know about Neupogen but I was put on Procrit for a short time before they took me off of tx .. It really sounds like you are having alot of trouble with the tx , I will be praying for you, remember that is the only chance you have at this time of clearing the Hep. I know it is the biggest fight you'll ever have to endure and it's for your life and anyone that is'nt in this position they have'nt any ideal as to the strain it put on a person mentally and physically.... Be Strong Friend... Hugs & Prayers, BlueEyed

deleted_user 05/05/2008

deleted_user 05/05/2008

Bless you friend, I know how hard it is for you...Here for you...

deleted_user 05/05/2008

Rudy,
I was on Neupogen for most of the 9 months I was on treatment last year. Other than having to take the additional shots I did not have any side effects at all other than those I was already having due to the interferon and ribavirin, which were pretty bad. Anyway, good news is if your experience is anything like mine the neupogen won't make things worse. Hang in there!

deleted_user 05/05/2008

I just came off the neprogen, 3 shots weekly basically put me in bed most of the time. Extreame fatique, brain fog and disorentation. The side effects from each shot lasted 1 1/2 days each and I seriously considered cancelling TX if I had to stay on it.

deleted_user 05/05/2008

I was put on Neup and proquit and unfortunatally I had side from both.But it does effect people differently. Just try and get thru it the best you can. Try doubleing your water intake so you don't get dehydrated. That is so inportant. Just hang in there it's not easy for everyone.

deleted_user 05/05/2008

Hello. I have been on Nuepogen for 5 months now and my doctor has told me to stop taking it because my immune systen is too high. I will see her today. I did have some side affects such as more fatigue and more joint pain. I am taking Darvacet and it helps. Neupogen affects people in differant ways so try it and as always drink plenty of water. God bless. David

deleted_user 05/05/2008

Hey, I was put on Neupogen my third week of treatment, I do 2 shots a week, which is a total of 3 shots a week with my Interferon. The medication only gives me slight joint pain, I take a tylenol and I feel fine.

deleted_user 05/05/2008

Hi Rudy yet you seem so up beat which is great..I havent spoken to you much..Im hoping this all works out for you..Ive heard many people needing this shot.......why are you keeping your illness a secret...do you mean from everyone?Im here for you anytime Dilew

deleted_user 05/05/2008

This part of tx was the worst! Like you, I couldn't breathe, was forgetful, itchy all over, including the ears.

Your low WBCs are making you feel so badly...sounds like anemia. My dr lowered my riba from 800 mg to 600 mg so I didn't have to do the neupogen. Once the anemia problem is addressed you will feel much better. just saw my endocrinologist and am also severely Vit D deficient. He said that will also contribute to the fatigue. Am on prescription strength D and he tell me to take my calcium on an empty stomach....

Hang in there kiddo. The kinks just have to get worked out.

Morpheus 05/06/2008

Yes I also had to use neupogen shots sometimes every day for a little while during treatments. The only side effects that I had from the Neupogen were burning sensation while injecting and a little after with redness at injection site as well. A couple of times I had extreme shoulder pain which may have been caused by to high of a white blood cell count according to the doctor and drug company. I was also taking weekly injections of Epogen to boost my red blood cell count. The Interferon/Ribavirin treatments were very difficult for me and my body to keep up with. I have completed my 48 week treatments for hep-c, geno type 1a on 4/22/08. My energy has returned and I am feeling better but my digestive system is still out of wack and very sensitive. It will be a little longer before I am back to 100%. I was not able to work, function or have any kind of life or quality of life while on treatments. I was very sick, depressed and angry at times but I made it to the end. If I can do it I know you can. God Bless You....morpheus

deleted_user 07/26/2008

Do you smoke, because I do and it has been very rough, in fact I had phenomonia three times and even now that I have finished my tx (just last week) i am still having breathing problems, I will let you know if this improves now that I'm off tx. My hep dr did say that smokers have a much worse time, You'd think that'd be enought to make me quit, but no....... addict to the end.

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