Ehlers-Danlos Syndrome Support Group
Ehlers-Danlos syndrome is a group of rare genetic disorders caused by a defect in collagen synthesis. Depending on the individual mutation, the severity of the disease can vary from mild to life-threatening. Common symptoms are unstable, flexible joints with a tendency to dislocate and subluxate, and elastic, fragile, soft skin that easily forms welts and scars.
Skin & Hair
Ehlers-Danlos Syndrome Support Group

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Hi,My names Christine and I'm 31 years old. In 2020 I was diagnosed with autism and have extremely sensitive skin... READ MORE
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Hello! My daughter is 16 and has been through various forms of testing for the last three years. She's had an ekg,... READ MORE
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I have had stomach problems all of my life. i was diagnosed with EDS about 4 years ago. I was wondering if any of my... READ MORE
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Hi,does anyone have any recommendations for any specialists? In the UK or anywhere really at this point I am... READ MORE
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Hello fellow Ehlers-Danlos Syndrome fighters! My name is Josh Stephenson, and I am on a mission to try to find the... READ MORE
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I am living in Austin, TX. My PCP has recommended I be evaluated for EDS and sent me a referral to a specialist in... READ MORE
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Well i never thought id be posting here but i wondered if someone could help me Ive been having symptoms since i was a... READ MORE
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Hey guys, recently been diagnosed with joint hypermobility disorder aka hEDS without confirmation because my doctors... READ MORE
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Hello all, I'm Jennifer from Southern California. I was diagnosed a few months ago by my primary doctor with EDS hyper-... READ MORE
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Hi, I am new to the EDS community and was just diagnosed back in April after having symptoms all of my life.. my... READ MORE
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Hey, so I'm new to this support group and I was wondering if any of you could help me. I have Ehlers Danlos Syndrome... READ MORE
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I just got diagnosed with EDS Classic with hyper mobility. I always thought I was a freak my entire life. Now I know... READ MORE
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I have visible veins behind my knees and I’m very sedentary so I don’t know if that’s why. Then I have visible... READ MORE
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I'm actually pretty happy that its been about a year since I've been to the hospital for stitches. I'm always getting... READ MORE
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Hey everyone i am new here. Recently i found out exactly what EDS really was, even though i was diagnosed when i was a... READ MORE

