Join Now
It's been a tough week across the globe. Share your thoughts in our new 2008 Financial Crisis support group.
(also known as Riluzole)
Riluzole is used to treat patients with amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's disease. Riluzole is not a cure for ALS, but it may extend survival in the early stages of the disease, and/or may extend the time until a tracheostomy may be needed.
Riluzole is available only with your doc... continue
More Information About Rilutek
Treatment Success Rate
| Top 5 Communities | ||
| Condition | Members | Success |
| Amyotrophic Lateral Scl... | 21 |
67% |
| Depression - Teen | 1 |
100% |
Overall, 68% (22
Members)
find Rilutek helpful
Rilutek Reviews
Working / Worked
No side effects ,, not sure how much it is slowing the ALS progression - now 3 1/2 yrs.
Working / Worked
I just got checked not better not worse
Working / Worked
not really helpful caused my husband not to eat
Working / Worked
Muscle twitching has slowed down.
Working / Worked
My wife's daughter is trying to separate me from my wife, which has had a really bad effect on my wife. She's lost the will to even try to fight anymore.
Working / Worked
treats muscle twitching. It has been helpful.
Somewhat Helpful
IN MY DAD'S SITUATION I DONT THINK THIS DRUG HELPED MUCH AT ALL. INSURANCE WILL PAY THE 868/MO. PRICE TAG, BUT I THINK IT WAS MORE OF A MENTAL FIX FOR MY DAD. FATIGUE WAS THE BIGGEST SIDE EFFECT
Somewhat Helpful
so far he can still walk with a cane or walker
Too Soon To Tell
One side effect of Rilutek is loss of appetite. This wasn't explained to me until I lost 32 lbs within 3 months. I only weighted 175 lbs to begin with. I've since stopped taking the medication for now. To continue, I will have to add another prescription to the list for an appetite enhancer.
Too Soon To Tell
no side effects, so far.
Considering
Parents are considering, but it is so expensive...Does it help?
Not Working
Jim used it w/ the hope it would at least slow down the symptoms, but it didn't.
Not Working
I was put on it when I was first diagnosed with ALS in 1996. It was too expensive and did not help, so I am no longer taking it.
Not Working
be very careful with rilutek! it progressed my husbands symtoms and when stopped taking it,he felt better.
Not Working
No help.
Showing 1 - 15 of 28 Reviews
Discussions
-
Lithium/Rilutek
Your post brought tears to my eyes as I read your progression I cannot help but think of my brother who in my opinion gave up the fight too early he w... [More] -
Rilutek
My husband has sporatic ALS and he has been taking rilutek since his diagnosis in March of 2005. Within a few days of beginning this medication, we n... [More] -
Rilutek
For those of you who have ALS or giving care to a loved one with ALS, has Rilutek served as a help, or as a discomfort? I believe my brother has fami... [More] -
Riluzole or nicotine for treatment of ocd
I have heard that nicotine does help. I don't think the delivery system of gum and patches work as well as smoking it, but the health risks of smokin... [More] -
Riluzole or nicotine for treatment of ocd
Hi,everybody, I was wondering if anybody has taken the Riluzole or nicotine gum or nicotine patches for severe ocd.Our 26yr. old son has tried every s... [More]
