lorrieonline's Journal

Today a different symptom occurred at work.  pain in the lower right leg - sort of on top of the shin.  Also my left thigh is intermittently irritating me. 

Called the doc office and was going to give it a couple of days to see if it cleared up (I still am in denial sometimes).  They called me back at home and I went in.

Now apparently, this is an exacerbation so the theory the other doc had on primary progressive leaves us.  Could be good news - possibly a slower progression in the long run.

Puzzled tho.  The doc was going to write a scrip for methylpred but I told him I wouldn't take it.  The edema is just unbearable.  He is going to have me on two days of gammaglobulin again but it didn't do anything last time.  He said that didn't mean it wouldn't this time.  Guess it was good I went in - he had never seen me have so much difficulty walking or trying to move my legs.

I came home and cried and took a nap.  The weekend I went on a shopping expedition with the ex and I could tell, I was having difficulty - it's just too hot to live here sometimes.   Heat index of 104 yesterday? Geeze.  Sunday night I went to sing and could barely walk myself to the car.  Im sure two drinks raises my body temp but do I have to give everything up that I love?  I love to go sing - I guess I dont need to drink but one and then have some soda or something.  This is going to be a learned process.  I really need to find a way to keep that temp down and am reading a lot about water, the miracle cure for everything.  http://www.watercure.com - I felt miserable and sleepy yesterday and drinking water seemed to perk me up a bit - does seem miraculous.  Maybe I'm supposed to be living back home near the Niagara Falls - now there's some water - fresh water.

Guess the medical folks will call me soon to set something up.  I really am not sure I need or want this gamma tho.  Ill have to research it again to see what it actually does - I don't remember, just that it didn't make me feel any better.  Oh, I have to get some more practical shoes.  Its too hard to walk in high heels anymore. (again) - feels like I need a vaca just to pla for this MS stuff. 

I am going to endeavor to sing even so.  It's one of the things that puts joy in my life - singing with my karaoke friends.  I'll sing from a chair most likely.  I think the doc likes my fighting spirit and that's why he wants to help me kick this exacerbation - said I've been fighting this all along, the gamma will help me to that.  Ah well.   Alas, maybe they will call tomorrow and I can go sit with the cancer patients on Friday or Monday.