Things are progressing....
Well, we have moved one step closer to our IVF. My RE's office called me yesterday and they got the paperwork from …
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It's been a while since I've been writing in this journal. Sunday started an exacerbation which is still going on. With our insurance plan changing to a high deductible one, I was a bit perplexed as to how to pay for the $1,500 deductible. Getting my meds refilled would have cost a pretty penny. It would have been easier to save for it (maybe).
The good news - the pharmaceutical company had a program they put me on for a year where my payment for injectibles is $50 per month. So much easier than $1,500 - I was almost panic-stricken until this went through.
Then the exacerbation. And why is that word so similar to exasperation - hmmm. Well, I refuse to take steroids. In my layperson's opinion, I think they take up at the same spot they left off last time and hit faster and farther with each succession. Then there's the gammaglobulin which I won't pay for. My doc provided an alternative script of aminopyridine. I faxed everything to a specialty pharamcy so they could make it up yesterday and I could pick up today. Won't be ready until Monday, at which point they will fedex it.
I was feeling forgotten about and pretty much infuriated until I noticed that forward on Friends in my inbox courtesy of Dave C. That story sure sets a perspective. Wow.
Trying to get my whole family to go to church with me tomorrow. My son needs the support right now and I' m trying to get him to learn about the support God has to offer during his trying times.
I hope that everyone battling this MS has hope and strength to keep on fighting - A psych friend of mine mentions that beating up a phone book with a hose to get the anger out will release the endorphins that will keep us from bottling up everything inside. Emotionally and physically. I haven't done it yet myself but am planning to.
Love to all.
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Again - MS SUCKS!!!!! Be well....
RiS
Exacerbation and exasperation I use interchangably. To me they have started to mean the same thing. Sorry you are dealing with this MS mess.
I like the phone book and hose idea. I may use that real soon.
Trying to get my family back to church with me, too. A strong relationship with God sure can help in these trying times.
Stay strong and take care! Big HUGS to you!!!
David
DaveC
Getting family to commit is like pulling teeth. I had a partner in crime, so to speak and we pulled the first part together. Now if we can get church Sunday, wow! Bringing my ex husband and my current boyfriend is a must although it seems sort of like a Shirley MacClain movie. It's all about family pulling together tho. Hopefully, tomorrow will provide a good report. Staying on top of family can do it and can surprise us all. I didn't expect they would all show up in tropical storm winds/rain Thursday, but they were there and we were able to have a productive meeting to start. My best friend, the psych counselor says it's better to have a reunion beofre picking out the caskets and I stand by that. Lots of love and good wishes for a wonderful weekend. I'll beat this MS depression even if with the help of a yellow pages, lol.
Lorrie
lorrieonline