Journal Entry for September 26, 2007
September 26, 2007 2:58pm
I talked to my psych yesterday and based on the fact Wellbutrin has made me calmer he has changed my diagnosis from Bipolar to Depression/ ADHD. …
awakening1001’s Profile
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awakening1001
is feeling OK
About Me
Please contact me if you want to talk about ONH. I am available by phone and I would definitely like to share my opinion so that others don't have to wait until they're 30 to find better care. It is a disorder, and it comes with a host of other problems. I don't care what the doctors say or are willing to acknowledge in their textbooks -- I know from experience. I have a long journey and I am still coping with this illness, but it has made me realize every day is a gift from God! ;)
Interests
art, science, comedy, movies, hiking, camping, reading, writing....
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Recent Activity
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Journal
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Journal Entry for September 18, 2007
September 18, 2007 12:52pm
On Sunday night I consulted a medical intuitive, Dawne McDonald. I was skeptical but it turned out to meet my expectations. She told me things that I …
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Journal Entry for September 12, 2007
September 12, 2007 3:12pm
Well I am feeling better these days hence why I haven't been checking in much. But now that some ONH families and individuals are contacting me, …
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Journal Entry for January 28, 2007
January 28, 2007 8:38pm
Today has been hard. I just found out I need a tonsillectomy. On one hand, I'm happy. On the other hand, I'm kinda scared about the recovery..... On …
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Journal Entry for January 16, 2007
January 16, 2007 9:14pm
The Best Way To Get Top Notch Medical Care Is To... Ask to see your medical file. And request a copy. Suddenly, my doctor was very attentive. …
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Support Groups
Close Optic Nerve Hypoplasia
My name is Sara. I'm 30 years old. I have ONH and was just recently diagnosed with PCOS (Polycystic Ovarian Syndrome) along with a variety of other health problems. It was only until recently that I started researching and discovered that they might all be connected to the ONH. I have had difficulty working because of these chronic ailments and having to see doctors on a regular basis. I am getting better now that I have found a good antidepressant regimin.
Close Asthma
Type: Adult AsthmaMy name is Sara. I have several chronic conditions... trying to find treatment... my hope is in hormone therapy... I am looking for some advice...
Treatments
Open Environmental Allergies
Type of allergy: Multiple Chemical SensitivityI have severe allergies/asthma. I am allergic to EVERYTHING!
Treatments
- Allegra Not Working
- made me too tired.
- Allergy Shots Not Working
- I should have a long time ago, but it seemed like SUCH an inconvenience.
- Entocort Not Working
- Singulair Somewhat Helpful
- It helps for the sneezing, but not post-nasal drip or sinus inflammation.
- Zyrtec Not Working
- Made me too tired.
Open Blindness & Visual Impairment
Type: OtherI have Optic Nerve Hypoplasia and lots of other problems, which were NOT diagnosed as being connected to ONH until very recently.
Treatments
- Oral Contraceptives Not Working
- Made me incredibly sick.
- Eating Healthier Foods Somewhat Helpful
- I have tried everything under the sun to feel better, including diet and exercise... it helped on the outside, but not on the inside
Open Tooth Grinding
awakening1001 hasn’t entered any details for this support group.Open Anxiety
Born with ONH (a visual disorder)... never received care for other systemic problems (which they now know is related to ONH)... just diagnosed with Polycystic Ovarian Syndrome, hence the horrible anxiety... have a doctor's appt later this month.
Treatments
- Acupuncture Not Working
- it was incredibly painful -- i later discovered ONH affects the nervous system. I would not reccomend acupuncture for anyone with a sensory integration disorder.
- Ativan Not Working
- Breathwork Considering
- BuSpar Not Working
- Klonopin Not Working
- Lexapro Not Working
- Paxil Not Working
Open Financial Challenges
I am having a hard time balancing my illness, work, and financial responsibilities... it's all so overwhelming, especially when treatments make me sick.
Open Chronic Pain
Born with Optic Nerve Hypoplasia... later discovered it causes other problems... very sensitive to sound (sometimes painful), which makes me edgy. I get overloaded by stimuli pretty easily (prolly why I like bookstores and nature so much). I am very sensitive. I am trying to learn how to manage my pain.
Open Depression
awakening1001 hasn’t entered any details for this support group.Open Food Allergies
awakening1001 hasn’t entered any details for this support group.Open Hives
awakening1001 hasn’t entered any details for this support group.
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Snapshot
awakening1001 hasn’t been active on the site in a while. Why not give awakening1001 a hug?
