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Well, this is my first post in my epilepsy blog. I haven't sought support in a long time, I think I've just been trying to ignore the problem, hehe. Surprise surprise. But I think it's time to give my disorder the attention it deserves, and finally become more honest with myself about how I feel.
Pretty crappy. That's how I feel.
OK, I want this to be an honest blog, but I don't want this to become a whiny blog, I'm not into that. I just want to be honest in a positive way. That's more my style. But if I feel crappy, I feel crappy. I gotta say it. =P
For a long time I've been taking Trileptal ( more than 2 years now I want to say), and the dose has slowly eeked up, like it always does with me, with the other meds I've taken. My seizures get a little worse, I take a little more medication, and so forth until the side effects kill me more than the seizures do, so I drop back or switch meds, and start over again. (This all under the supervision of a doctor, of course!)
Right now I'm taking 2400 mgs of trileptal a day. I get the blurred vision, dizziness and inability to walk myself to bed (I've leterally crawled along on the floor when I had to), never mind the horrific headache that goes along with. But I still get seizures.
I've tried Tegretol--same thing. Keppra--same thing only ten times worse!! Zonagran--same thing, only different side effects (UTIs and severe weight loss--bad weight loss). Now I'm on trileptal. I'm getting the feeling these seizures aren't going to leave. So I just sorta cope with them. I've put the medication thing on the back burner and I'm just kinda status quo.
So, that's life with epilepsy for Josie (in a nutshell). I'll write more on my history with epilepsy in a differet entry, I don't want things to get too confusing, especially since I'm still trying to learn to navigate this site.
