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  • Image of sweetshaygirl

    About Me

    I am disabled due to lupus, probably due to a miscarriage I had when I was twenty. I am really into my church, my family, reading, writing (I'm soon to be a published writer), acting, and hoping to see what God has in my relationship with my current boyfriend, Dean. I love angels, music boxes, and teddy bears.

    Interests

    I am very involved in my church, I like old movies (especially mysteries), my favorite TV show is "Monk, " simply because it is so well written!! I love writing--I am working on a series of children's books that I hope will be published (a famous singer/songwriter and my college writing prof. both said they can be published, and have hooked me up with an agent--we'll see how that goes!!). I have hundreds of books...I love to read. My baby sister is 17 now, and I've helped raise her. She is the light of my eyes.

  • Recent Activity

    July 17

  • Journal

    • Having A Rough Time

      Mood July 17, 2008 6:28pm

      I've been having a hard time lately...a lot of pain, but I try to keep my eyes turned upward to God's glorious Face.  Praise His Name, …

    • Feeling Horrible Today!!

      Mood June 13, 2008 3:26pm

      AAAAIIIIIGGGHHHH!!!!  I am in so much pain today; I feel like I can't stand it, and I can't stand not knowing if i have cancer or not …

    • Still No Word

      Mood June 9, 2008 2:23pm

      Still no word about this potential cancer....and I'm worried because of how bad my bones hurt.  Could this be bone cancer, because that is …

    • Difficult Life

      Mood June 7, 2008 2:52pm

      I'm so worried over this potential cancer.  It's all I can think about, when I'm not struggling to breathe, that is!!  I feel …

    • So Much Is Going On

      Mood June 6, 2008 1:15pm

      So much is going on!!  I have this sore on top of my head, and I don't know if it's cancer or just a lupus lesion.  Either way, I …

    Read Journal

  • Hugbook

    Give sweetshaygirl a hug

    • Hug

      From aubleeanna July 10

      Sending you more hugs. I'm keeping you on my mind. peace and love ...

    • Hug

      From Nancee July 7

      Hi, haven't heard from you for a while but I've been thinking of you. Hope today finds you a little better.

    • Hug

      From aubleeanna July 4

      More hugs coming your way, sweetie. I'm keeping you on my mind. peace and love ...

    • Hug

      From aubleeanna June 17

      Many gentle hugs for you, sweetie. peace and love, Kyle Anne

    • Hug

      From Allie321 June 13

      You have so much going on. Hang in there!

    Read Hugbook

  • Support Groups

    • Close Infertility
      Type: Other Uterine Issues

      I had a miscarriage at the age of twenty, which nearly caused a nervous breakdown seven years later when finally I told someone. That was such a relief!! I had to have a radical hysterectomy when I was 31, and it is difficult for me to get over the fact that I will never carry a child in my womb. I am hoping I will find the hope and help I need here to get over this to get over this crushing disappointment in my life.

    • Close Lupus

      I have a severe and complicated case of lupus. It affects my central nervous system, digestive system, heart, lungs, and skin. I have found the people of this group to be wonderful, and I am so grateful to have found this site. The support everyone gives each other here buoys me up through many a bad day.

      Treatments

      Celebrex Working / Worked
      Allergic Reaction...messed up my stomach
      Support from Friends & Family Working / Worked
      I have a great church family, even though it is small. Everyone understands about my illness, and they are so supportive. I can have a seizure while a church, and no one gets upset, and they never embarrass me. I love those people dearly.
      Support from Friends & Family Working / Worked
      My family is tremendously supportive. I had to come home from college at the age of 21 when I got sick, and they have never complained about having to take care of me. Their names should be honored before all the world.
      Medrol Working / Worked
      take a lot
      Plaquenil Working / Worked
      take twice a day
      Prednisone Working / Worked
      am currently using for treatment
    • Open Bone Cancer

      Hi...I'm Shannon. I also have a really complicated case of lupus that makes my life...shall we say interesting? A couple of months ago I had a positive test for bone cancer, and I'm having really severe pain in my bones. The doctor doesn't think it's that serious, and I don't know if I should get a second opinion or not. All I know is that I'm in a lot of pain and the pain pill they are giving me for my lupus are even TOUCHING this bone pain. I'm really scared and I don't know what to do.

      Treatments

      Support from Friends & Family Working / Worked
      Lots of pain, waking up in the night, lidoderm patches which I seem to be allergic to.
    • Open MRSA

      I found out that I have MRSA about two weeks ago. I've been through the Infusion treatment, but it looks like it's coming back. I am very discouraged and would appreciate the support offered by your group. Thank you.

      Treatments

      Bactrim DS Working / Worked
      has worked to a certain extent
      Biaxin Working / Worked
      works the best of all my antibiotics
      Vancomycin Working / Worked
      was on a nearly ten day infusion treatment of that...it was very difficult and very tiring.
      Support from Friends & Family Working / Worked
      My family has really been there for me. I couldn't have made it without their love and support.
    • Open Skin Cancer
      Type: Malignant Melanoma

      It looks as though I am in the early stages of melanoma. I have received a lot of help at this site and would like to join this group.

    • Open Crohn's Disease & Ulcerative Colitis

      I have been dealing with lupus for many years, and it has been affecting my digestive system for about eight years now. I was diagnosed with Crohn's Disease while in the hospital to have my stomach removed in 2005. It's such a miserable disease, but in light of everything I have to deal with, not the worst thing.

      Treatments

      Avoid Certain Foods / Chemicals Working / Worked
      Avoiding certain foods, like citrus, has helped a lot.
      Prednisone Working / Worked
      I hate the side effects of prednisone, and am on it often for lupus too.
      Surgery Working / Worked
      I have had many surgeries for my gastro. system.
      Faith Working / Worked
      I could not make it without Christ by my side and in my heart
    • Open Chronic Pain

      Lupus has ripped apart my body, and has inflicted terrible pain throughout this mortal clay. I would very much like to join this support group.

      Treatments

      Acupressure Working / Worked
      didn't help
      Chiropractic Adjustment Working / Worked
      helps a lot
      Flexeril Working / Worked
      used until they are no longer effective
      Heat Working / Worked
      helps a lot
      Lidoderm Working / Worked
      helps; I use it quite often
      Morphine Working / Worked
      helps a lot
      Neurontin Working / Worked
      shut down my kidneys
      Oxycodone Working / Worked
      allergic
      Topamax Working / Worked
      really helps my headaches!
      Faith Working / Worked
    • Open Epilepsy & Seizures

      I have been epileptic since the age of nine and suffer from at least one seizure a month.

      Treatments

      Depakote Working / Worked
      allergic
      Dilantin Working / Worked
      affected my liver; allergice
      Klonopin Working / Worked
      works very well!! does help to control seizures to some degree
      Neurontin Working / Worked
      allergic
      Topamax Working / Worked
      works very well
      Faith Working / Worked
      Faith Working / Worked
    • Open Bereavement

      I suffered a miscarriage when I was twenty and just have had a really hard time getting past it.

      Treatments

      Crying Working / Worked
      Getting Angry Working / Worked
      Grief Counseling Working / Worked
      I've been in counselling for five years now
      Helping Others Working / Worked
      It does help me get my mind off myself to work with others who need it
      Keeping Busy Working / Worked
      Music Working / Worked
      Pets Working / Worked
      Poetry Working / Worked
      Prayer Working / Worked
      Reading Working / Worked
      Remembering Working / Worked
      Support from Friends & Family Working / Worked
      Support Groups Working / Worked
      Talking Working / Worked
      Time Working / Worked
      Faith Working / Worked
  • Groups

  • Friends

  • Snapshot

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