Ah back pain! I hate it, it needs …
Ah back pain! I hate it, it needs to go away. Hopefully a neurologist will be able to see me soon. The thing …
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Though this day isn't horrible, it's simply much worse than yesterday.
I started off feeling extremely tired yesterday night. Instead of going to bed like I should have, I stayed up till my late hour as usual.
When I went to bed I fell asleep easily. I have a lot of night terrors (bad dreams) and have had them all my life. Though they don't usually wake me, they are still disturbing, and I think they contribute to my RA. I'm thinking of buying some 5htp as I read that this helped children with night terrors. Perhaps it would help me? I'm child-like, right?
The strangest thing too is I often dream about ghosts. Though I am not afraid of ghosts, and don't usually give them a second of thought, that's what many of my dreams are about. So last night when I woke up in excrutiating pain, and remembered the grusome and ghostly dream I just had, I couldn't look in the mirror in the middle of the night. I figured it was best not to add to my imagination.
My shoulders have been bugging me when I sleep. I think I should go back to taking tylenol pm. I think that combo was helping, as not sleeping makes your RA worse and it becomes an endless cycle.
So when I woke up last night, at first I tried moving to a new position. Then I realized it felt more like my neck, shoulder and arm were in a tight locked muscle crunch, like a charlie horse or something. I continued to try and stretch those areas which was my only relief to the pain it was causing. Though I kept stretching the pain would not cease, even though it seemed slightly better, or more painful at times when I was in a stretch. I got up and took some pain killers and went back to bed. Again, my muscles felt like they were locked up. I continued to do little stretches as I tossed and turned. About an hour later, my hunger had added to the mix of pains. I got up and ate some string cheese and nuts, did a couple of half-ass stretches and went to bed. I think I tossed and turned for about an hour more and finally fell asleep.
When the alarm started going off in the morning, I was certainly in no mood to jump out of bed. I was late again, despite my efforts to be quick. No one said anything however, and I keep wondering which will come first....me being on time, or them complaining? Hopefully it will be the first choice.
I still have a knot in my right arm. It seems to get worse as I work on the computer. Yet, I can't seem to massage it out.
I've also fallen off the exercise wagon. It began with painful feet.........and I started exercising less........and then we house sat, which meant no gym on the weekend......and I had a lot of fatigue........and I just haven't been back on track in about a month.
And where are my enzymes? Geez, it's truly taking them forever. Don't they realize this is urgent business?
RA sure can make you frustrated, can't it?
Anyway, I'm learning quite a bit on lightwave, so at least there's some good news.
I hope everyone is doing great!
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Well, that stinks. Hope it's all short-lived, but, yes, RA is pretty danged frustrating alright. So, what's your theory on why you had this shift? You sounded so good yesterday. I forget: have you had fibromyalgia? You're describing stuff that sounds more like it's soft tissue than joints. Are you good with calcium? I didn't see that on your list of meds, and I've always heard that low calcium and/or magnesium can cause muscle cramping. Others say low potassium. But you did what I've always done: had some cheese.
I've always felt that good sleep has been been my number 1 healing agent. It was particularly noticable with fibromyalgia, and to a lesser degree, with RA, too. You need some amount (inividual need) of deep sleep to produce growth hormone and for your body to repair the zillions of micro-lesions that occur every day. I went to a pain clinic years ago, where a doc prescribed prozac, because it's a seratonin re-uptake blocker, which was supposed to mean less pain. He also sent me to a sleep clinic, where my restless leg syndome was confirmed, which was theorized to be rapid cramping from fibro. The doc conducting the study told me that the prozac was an insomniac, so it was all a catch-22. Sleep is to be treasured.
It's really, really tough to keep a consistent routine going when there are so many ways that RA can sneak up on you. I know you'll get it all worked out. I hope your enzymes get there quickly, too. You're the resident non-toxic RA experiment. It's got to work, so the rest of us can jump in with you. How about that for some extra pressure. Our hopes are riding on your success!
Take care, take it easy and I hope you feel excellent very soon.
Doug
bc2
Hey Doug,
I'm certainly not ruling out Fibromialgia, but according to DS, RA is also, "The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and muscles."
It feels like a hard knot, and I wonder if the inflammation in the joints leads to the knot because the rest of the muscles are trying to compensate for the inconvenience. If there was no physical knot, then I think I would be more likely thinking it was Fibromialgia.
Calcium is a good theory. I started taking a multivitamin that has Calcium in it but it's only 20%. Perhaps that is the culprit and certainly I need to add it to my list....(so I will!), and thanks!
If it's not calcium, or if that's not totally it, the rest of my theory is that perhaps I have a little bug. Last night I was hot and cold, then hot and cold again. So perhaps the LDN is fighting the cold instead of my RA. As well, it could be that I'm still coming off the effects of the short lived Sulfasalazine.
I appreciate the comment, "You're the resident non-toxic RA experiment". It made me laugh. Yes, I want success too so I can share it with all of you. I'm working on it! :)
Still no enzymes! Damn them! I went to the website again and it said 3 to 5 business days, and it's been 5! I don't know what the deal is. I wrote them some emails and made a couple of calls. I guess I'll just bug them until I get the pills. Perhaps I could get them to give me a discount for waiting so long....as always, I like to make lemonade out of lemons, and a discount would assuredly be nice!
Thanks for you support Doug, I hope we both feel very excellent soon!
SarahKeturah