Happy July 4th!
July 5, 2008 6:53pm
It's a wonderful day in the neighborhood, the sun is shining, the birds are singing and the bbq is on. The family is here working supper so I …
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JillyT’s Profile
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JillyT
is feeling Bad
About Me
I am married with 2 grown daughters and 2 grandchildren. I was working as an accountant but was laid off in 2005. I have one year left of my Master's program. I feel much better now than when I first was diagnosed with RA, but still working on finding the right combo and level of meds.
Interests
I love to read, play with my grandchildren, gardening, and used to do all kinds of needlework. I love to laugh and enjoy comedy movies - I am a big movie buff. I have one dog named Roxy, she is 10 months old and is an Izberian Hound and American Staffordshire Terrier mix. I am hoping that having Roxy will encourage me to take walks and play with her and get this body moving! I love cooking (and eating) and enjoy all kinds of music. I like camping and fishing, and sightseeing. I am always interested in making new friends.
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Journal
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Journal Entry for June 29, 2008
June 29, 2008 1:14am
Well the new pump arrived on Saturday for the pool so we are filling it up again and it should be ready at the latest by Monday - just in time for …
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Hugbook
Hug
Meant to tell you the other day that I liked your photo--you have a beautiful face! Then, noticed that your puppy''s back up--who is also very pretty!!:>) Just wanted to say hello and send a hug! Ginny
Hug
Jilly - This bread pudding recipe doesn't use leftovers, but its not hard: DELUXE BREAD PUDDING (Preheat oven to 350 degrees) 4 slices bread, toasted 3 eggs beaten 2 tablespoons butter/margarine 1/3 cup white sugar 1/3 cup sugar (white or brown) 1 teaspoon vanilla 1/2 teaspoon cinnamon Dash salt 1/3 cup raisins, soaked in water or rum to soften 2 1/2 cup milk, scalded Make toast, spread with butter, then sugar and cinnamon. Make sandwiches with sugar/cinnamon mixture, cut in quarters. Arrange quarters in single layer in greased 1 1/2 quart casserole. Sprinkle with raisins. Blend rest of ingredients and pour over toast quarters. Place casserole in pan of very hot water 1" deep. Bake 65 to 70 min. or until knife inserted 1/2 way between center and edge come out clean. Remove from casserole and serve warm or cold. Makes 6 to 8 servings.
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Hug
Jilly = thanks so much for the driveby hug - that's special! Have a great time tomorrow; it's my son's birthday so I expect a busy day. Lynne
Hug
that chat thing will not load!@!! Kristen tried also, and it finally kicked me out. Go get in the pool, and splash for me ok? love ya me
Hug
WEDNESADAY HUGGLES TO YOU...HAVE A GOOD DAY...GERRI
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Photos
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Goals
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Support Groups
Close Rheumatoid Arthritis
I've had Fibromyalga for about 18 years, back surgery to correct degenerative disk disease, another form of arthritis 19 years ago. Have OA, & was diagnosed with RA in the fall of 2006 and now Gout. Am still in process of finding right level of medications. I also have IBS - its a pain in the - well you know ! Also have Asthma; chemical, environmental, & food allergies; dealing with side effects of surgical menopause. My hair is trying to move from my head to my upper lip! I will not submit!
Treatments
- B-Complex Vitamins Working / Worked
- Fish Oil Working / Worked
- This is supposed to help reduce inflamation. It's also good for the skin and hair - figure it can't hurt.
- Folic Acid Working / Worked
- Haven't had any sores in my mouth since I started on 2mg
- Glucosamine/Chondroitin Working / Worked
- I have added it because I have been told that the cartilage has worn away extensively in both knees. I am hoping it helps me before it gets any worse...
- Humira Working / Worked
- I used to take a 40mg shot once every two weeks, now I take it once every week. It has really made a difference! I am finally able to cut down on the prednisone
- Methotrexate Working / Worked
- I am up to 9 pills - 22.5mg, and have been holding steady since -well I flared again and again and I am at the maximum dosage so we are adding Humira. I have been having trouble with increased levels of liver enzymes. It may just be due to my fatty liver, the fact that I am overweight and my high cholesterol. But to be on the safe side my rheumy has lowered the MTX to 6 pills a week. I noticed a difference right away in my pain level.
- Milk Thistle Working / Worked
- This is an herb that supports liver function. I have fatty infiltration of the liver, & Methotrexate is also hard on the liver so I added this as a preventitive measure.
- Prednisone Working / Worked
- Definitely helping, but I have put on 60lbs in 2 years - not happy! Can't wait to be weaned off so I can get back to normal. Have to take fossamax, calcium & D to counteract. I was on 15 mg - am finally down to 8mg. I am decreasing one mg each month.
- Relafen Working / Worked
- I think, Its hard to tell because I am on so many meds & supplements I am not sure which ones are actually helping...
Close Fibromyalgia
I've had FM for a long time. Water exercise, laughter, and sleep help me feel better. Usually have trouble sleeping, hard to get to a pool, so I watch comedies and laugh a lot! I also have RA and when one of them acts up it kicks the other into high gear. The combination gives a whole new meaning to hell on earth - ouch!
Treatments
- Aqua Therapy Working / Worked
- I took aqua aerobics class a couple semesters in school and I felt much better. Don't have access to them now
- Elavil Working / Worked
- I take this at night 50 mg and it is finally starting to help me sleep. My FM symptoms seem to be under control but FM & RA seem to boost the bad effects of each other
- Lyrica Too Soon to Tell
- Just started this on June 20, 2008. My dr starts out slow with 50mg at night for a few days, then it will be 50 2 times a day, then 75 mg 2 times a day and will continue until find the right level for me. Starting it like this has prevented poor side affects.
Open Irritable Bowel Syndrome (IBS)
JillyT hasn’t entered any details for this support group.Open Hiatal Hernia
I was having a lot of pain and indigestion. I had an upper endoscopy and they found the hernia. Truthfully, the pain got much worse after the test. Prilosec keeps it mostly under control. Occasionally I will get an attack of pain and if I can sip some hot water, that seems to relax it and allows me to burp.
Treatments
- Prilosec Working / Worked
Open Sjogren's Syndrome
I first noticed chronic dry mouth, buring tongue and horrible metallic taste in summer of 2003. Now I must carry water with me everywhere I go. My mouth gets so dry I can't talk or swallow without wetting my mouth first.
Treatments
- Salagen Working / Worked
- I take 5mg 3 times a day - started a little over a month ago. I definitely notice a difference but I still have dryness. My eyes also aren't as dry anymore - yeah!
Open Fatty Liver Disease
JillyT hasn’t entered any details for this support group.Open Asthma
Type: Adult AsthmaThe first time I noticed wheezing and having difficulty breathing was when I was on a camping trip, pregnant with my first child at the age of 18
Treatments
- Albuterol Working / Worked
- Flovent Working / Worked
- I have been switched from the Advair and this is working so much better - I've noticed a real difference
- Singulair Working / Worked
- The doc added this to my regimine this winter (08) while I was having so much respiratory illness. I think it has made a big difference.
Open Chronic Pain
Treatments
- Chiropractic Adjustment Somewhat Helpful
- Heat Somewhat Helpful
- Lyrica Too Soon to Tell
- just started taking it
- Physical Therapy Not Working
- TENS Not Working
Open Hepatitis C
For my friend Missy
Open Gout
My doc just called and said she thinks I have gout, all in addition to RA, OA, SS and Fibro - can I say enough already!
Open Degenerative Disc Disease
I had arthrodesis and a lamenectomy of l4, l5 and s1 using knodt's rods. They took a piece of bone from my pelvis to put in between the vertebra to start the fusion process. This was in 1990 due to Degerneratve Disc Diesease. In 1992 the fushion continued to grow in size and encroach on nerves surrounding he area and I had surgery to scrape back the fushion. They removed the rod o the right side, but the one on the left side was so involved with the boney growth that they could not get it out
