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  • Image of petitep

    About Me

    It could be so much worse... I've had a Stroke, PFO closed (heart surgery), Autonomic failures (Dysautonomia), Neuropathy (Nerve Damage - feet, hands and legs) Asthma, Fibro, Migraines (that mimic stroke +++)

    Interests

    Hmmm...... LOL Giving my opinion!

  • Recent Activity

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  • Journal

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  • Hugbook

    Give petitep a hug

    • Hug

      From GTK Today

      Hi there... something funny going on with messenger... it won't send my message. I will sort it out tomorrow... going up to bed now. Hope you are ok... sending lots of hugs... take care... xxx

    • Flower

      From AnimalHeadbutts Yesterday

      Hope you are doing well.

    • Hug

      From azfemale Saturday

      i cant wait for friday im sure it will arrive rightr after thursday as always just the drive will seem to take forever im sure huggs to you keep your spirits up friday will be here before saturday as always

    • Flower

      From Lesa Saturday

      Hugs my friend.I miss you!

    • Hug

      From jstout July 12

      They are sending my laptop back to the motel with my parents, but I wanted to send a message telling you how much I appreciated you wanting to come visit. It means a lot to me.I am sorry I couldn't visit with you tomorrow. They intend to keep me in ICU for a few more days. Hopefully, I will get moved to a room soon. Lots of love and BIG HUGS!!! Janet

    Read Hugbook

  • Goals

    Progress

    30 %

    started / completed (tasks)
    3
  • Support Groups

    • Close Stroke

      Stroke R-sided, PFO hole in heart (fixed) with autonomic failure and neuropathy.

      Treatments

      Aspirin Working / Worked
    • Close Chronic Pain

      Nerve damage, feet, legs, hands and it's progressing... Autonomic Failure I'm either on drugs and the pain is manageable and I'm sleeping for the rest of the day or I'm awake and pain levels are out of control.

      Treatments

      Neurontin Working / Worked
      Oxycodone Working / Worked
      Feel drugged, but it works, side effects are ugly.
      TENS Not Working
      made my nerve damage worse
      Ultram Working / Worked
      Not sure, too early to tell.
    • Open Migraine Headaches

      Migraines with auras, vision and/or balance loss at least once a week, flu like and overwhelming gotta lay down in silence...

    • Open COPD & Emphysema

      Mu mom has severe COPD

      Treatments

      Advair Working / Worked
      Spiriva Working / Worked
      Oxygen Somewhat Helpful
    • Open Brain Injury

      Stroke 2 years ago, short term memory issues, autonomic failure, nerve damage

    • Open Aphasia

      I had a stroke 2 years ago - mild aphasia, now I get migraines that mimic stroke - had severe aphasia for a few days... Hard time with it all

    • Open Medical Mysteries

      autonomic dysautonomia, nerve damage and stroke - all are mysteries

    • Open Multiple Sclerosis (MS)

      petitep hasn’t entered any details for this support group.
    • Open Sjogren's Syndrome

      petitep hasn’t entered any details for this support group.
    • Open Degenerative Disc Disease

      petitep hasn’t entered any details for this support group.
    • Open Back Pain

      petitep hasn’t entered any details for this support group.
    • Open Charcot-Marie-Tooth Disease

      petitep hasn’t entered any details for this support group.
    • Open Celiac Disease

      petitep hasn’t entered any details for this support group.
    • Open Chronic Fatigue Syndrome

      petitep hasn’t entered any details for this support group.
    • Open Myasthenia Gravis

      petitep hasn’t entered any details for this support group.
    • Open Fibromyalgia

      wanted to reply to a post found in search

    • Open Lupus

      wanted to reply to post

    • Open Lyme Disease

      petitep hasn’t entered any details for this support group.
    • Open Restless Legs Syndrome

      petitep hasn’t entered any details for this support group.
  • Groups

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