Journal Entry for February 18, 2008
February 18, 2008 12:36am
I am still alive, and am trying to kick. Things have been up and down with me, having a couple of relapses and many med changes. Life at …
peg916’s Profile
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peg916
is feeling Bad
About Me
Divorced mom of 3 wonderful and beautiful girls. My youngest graduates from high school, middle is 2nd yr in college and oldest is an RN out on her own. Administrative Assistant for a Heart Instistute in Upstate NY. Love my job, keeps me involved with community heart and health activities as well as keeping my mind going. Love life, dislike aching so much, but it could be worse. Miss the old days.
Interests
Love to spend time with my three daughters-they're growing up so fast.I am an avid reader, that is the only thing good about flare ups, it gives me a chance to catch up on my reading. I cannot make it through the day w/o doing a crossword puzzle, a trait passed down from my father.(it's the real reason I buy a newspaper everyday, haha) I also adore my sheltie, Scarlet. Love to garden, but where I live now doesn't allow me to do that, so I just admire everyone elses for now.
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Recent Activity
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Journal
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Journal Entry for January 19, 2008
January 19, 2008 11:37am
You will note that I updated my photo. Note also that it is very distant-thus letting you know how much I DESPISE having my picture …
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Journal Entry for January 18, 2008
January 18, 2008 6:37pm
It's amazing how when I first signed on to DS, I couldn't keep myself off. I feel badly that I am not like I used to be, as I really …
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Journal Entry for December 15, 2007
December 15, 2007 11:47am
Back again after a lengthy absence. Haven't been doing so well, however, I continue to go to work almost every day. I've been staying …
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Journal Entry for November 27, 2007
November 27, 2007 8:57pm
Wow, Have I been gone for a long time! Sorry friends, I haven't fallen off the face of the earth, just the face of the computer. …
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Hugbook
Hug
GREAT BIG OLE GIZZLY BEAR HUGGGGGGZZZZZZZZZZZZZZZZZZZZZ SQUISHHHHHHHHHHHHHHHHHHHHHH
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Hug
It's not what you gather, but what you scatter that tells what kind of life you have lived.great big ole grizzly bear hugggzzzzzzz squishhhhhhhhhhhhhhhhhhh
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Hug
I loved this and thought of you. Knock, Knock - I knocked at heaven's door this morning. God asked me...'My child, what can I do for you?' I said, 'Father, please protect and bless the person reading this message.' God smiled and answered... ‘Request granted'
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Hug
Chocolate said to a lollipop, you are damn sweet. And the lollipop said : Not as sweet as the person reading this! Your smile makes me smile... Your talks make me glad.. Your company makes me happy... But your absence makes me sad... Be always with me my friend!!!
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Hug
Friends are like balloons; once you let them go, you can't get them back. So I'm gonna tie you to my heart so I never lose you.
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Photos
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Support Groups
Close Multiple Sclerosis (MS)
Type: Relapsing-remitting MS45 y/o divorced mom of 3. PCP dx'd in Apr 07, Neuro confirmed diagnosis on May 18, 2007. was in flare up when dx & was treated with solmedrol and pred. symptoms alleviated,however, continue to have relapses. Taking taking Avonex, Baclofen, Provigil, Soma, Zoloft,Lidoderm patches, meds for hypertension, high cholesterol, hypothyroidism and seizure disorder.Have significant pain in lower back, spasicity, leg cramps, bladder incont. & constipation
Treatments
- Solumedrol Working / Worked
- Seems to do the trick so far. Second treatment within 3 mo. Had 1st infusion @ o/p clinic, now do @ home w/assistance of home care agency.
- Avonex Somewhat Helpful
- Side effects have increased the longer I've been on. Have aches, pain & headache next day. Not really sure I like it anymmore.
- Baclofen Working / Worked
- Seems to ease some of the cramping in the legs, but wears off quickly
- Beta Interferon Working / Worked
- Cytoxan Working / Worked
- Helps with the nauseau from the solumedrol.
- Neurontin Considering
- Wish the dr would put me on this.
- Novantrone Considering
- Really would like to try this.
- Prednisone Working / Worked
- I hate the side effects, and I seem to get plenty of them. Would just asoon not take it, if I didn't have to.
- Solumedrol Working / Worked
- LOVE the quick fix, it seems to really help. Unfortunately, I seem to get back to the yucky life fairly quickly.
Close High Blood Pressure
dx'd @ 15, been on meds since 19. Mostly Norvasc. A wonderful inheritance from my Dad (God rest his soul, who died of a Massive MI) Heart hx, is RAMPANT in my family-you name it, we've got it, had it and unfortunately will pass it on!
Open High Cholesterol
dx'd mid 30's been on zocor, lipitor, now just plain ole generic, doing pretty well w/it
Open Hypothyroidism
dx'd by endrocrinologist @ 17. Been on med's ever since. Rember she told me, it's just like eating an M&M every day, just take your pill and that's it. It pretty much has been.
Treatments
- Synthroid Working / Worked
Open Epilepsy & Seizures
Have been diagnosed with Non-epileptic "pseudoseizures"-How I hate that diagnoses! They are anything but pseudo, they have incompacitated me many times over. Hospitalizations-they drive up my BP so bad,and once it took 4 days to bring it back down. Been pretty good with them lately, just got to remember, do NOT drink heavily while on the meds!!
Treatments
Open Stress Management
Type A personality, overachiever, no self esteem, and my own worst enemy. Cannot do enough to please myself, constantly worried what how others judge me(as much as I worry about how I judge myself). Wish I could turn this thought process around, have improved, been to a couple of seminars through work, but my stress roots are tangled down around the bones of my toes, and I can't seem to pull them out all the way!
Treatments
- Music Working / Worked
- I love to listen to instrumentals-they soothe my soul. Sometimes spirtual-but my coworkers aren't the biggest fans, so I don't listen this as much.
- Patience Working / Worked
- Deep breathing techniques, taking power naps, walking away-instead of standing & arguing(Always did this)
- Physical Exercise Working / Worked
- Tried to begin walking more, but after my MS diagnosis, my walking isn't the best, and actually frustrates me more, because I've become so self-conscious of my tripping, etc.
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Snapshot
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