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banffgirl's Profile

Feeling: Horrible  - Horrible
Gender: Female
Age: 49
Location: TX
Interests:
i love taking road trips with my hubby, i love nature, i love the mountains most of all! when i am in nature i feel closest to God in the wonderous world He has created. i want to see the whole country by road trip eventualy. i also love to take to the road and go visit family in Canada. i like to stargaze at night. i love istening to soft music.i have constant siezure activity in my brain so my memory sucks! the picture i have posted i took in the Garden of the Gods CO. i also love photography and i have decided to taking up painting. too many pitures swirling in my head why not try to bring them to life.
About Me:
I have 3 grown children 30, 28, 25. i have 5 grandchildren who are fun to play with but though i rarely get to see my boys daughters, so my daughters 7yr son and 3yr identical twin boys are a riot. my favorite poem is footprints in the sand because it reminds me no matter how bad things get, God is with me carrying the load for me even if it doesnt seem like it at the time. My brain has died a thousand deaths and i am just too tired............MY FAVORITE PHRASE IS " LIFE IS FRAGILE, HANDLE WITH PRAYER"

Recent Activity

 
Sunday, May. 11
banffgirl gave TunaMan a Hug 8:16pm
"thank you terry, you are so sweet! ..."
 
Saturday, May. 10
banffgirl wrote a comment on BobCJ's Journal Entry 4:04pm
"it take it you are talking about th..."
 
Friday, May. 09
banffgirl wrote a comment on davita1234's Journal Entry 12:13pm
"davita i forgot to say that it does..."
 
banffgirl wrote a comment on davita1234's Journal Entry 12:06pm
"davita, read my last 2 journal entr..."
 
banffgirl gave SavedSoul2006 a Hug 12:01pm
"hi darla, just sending you my love ..."
\/ More Activity


  • Hug

    danroy (Yesterday)

    a morning hug for yo. god loves you and so do I. hxhx


  • Flower

    Aust (Yesterday)

    Hows the painting thoughts? May be a group you could join near you and get some tips from? Life can also be short, so enjoy it, so many dont get the chance or time. Hugs


  • Hug

    Pharoah (Yesterday)

    Hey Sylvia - just to remind you, you're awsome!

banffgirl hasn't added any photos or videos yet.

Goals

Support Groups

 Epilepsy & Seizures
diagnosed w/abscence at 6 yrs, at 12 told gone, at 25 i had my 1st tc & diagnosed primary generalized e,my brother told me i had abscence in jr & high school )but never said anything back then, under control til 4 yrs ago at 45 & tried every drug combo, sent to epi spec is my neuro now, had testing & told i was slow & low iq now plus some other stuff.i'm intractable with constant large epileptic spikes on my veegs which he says is genetic & wont go away, trying to find meds to stop tc 
Treatments
 Avoid Certain Foods / Chemicals (Working / Worked)
aspartene - abscence seizures
 Depakote (Not Working)
lost hair gave me tremors
 Diastat (Not Working)
stopped working
 Dilantin (Not Working)
tried at 25 didnt do anything
 Keppra (Somewhat Helpful)
stopped taking, made me mentally unstable, did little help for seizures
 Klonopin (Not Working)
it is working but have to take 6mg a day for it to do really good, doc cut me back to 1/2mg/3x day with topamax now in my meds
 Lamictal (Working / Worked)
working well
 Neurontin (Not Working)
on it for years w/tegretol upped dosage and i got tremors really bad found out from resont veeg, it wont work for my e anyways
 Tegretol (Not Working)
started giving me t/c after being om it for 20 years
 Topamax (Working / Worked)
working great this time
 Tranxene (Not Working)
was on it for 4 yrs doc cut me back from 3 to 2 to 1 now 0 cuz it became toxic
 Trileptal (Not Working)
slept alot didnt do anything for my seizures
 Vagus nerve stimulation (Working / Worked)
my tonic clonic siezures have reduced. yes!!!!
 Zonegran (Not Working)
at top dosage 400mg 2x a day
5 Members 12 Posts
 Asthma
i have allergic asthma, but cuz of one of my seizure meds, i cant take decongestions or antihistamines so i have to use a inhaler and pulmicort to be able to breath when allergy season is which is almost 12 months here 
Treatments
 Advair (Somewhat Helpful)
write up scared me, i stopped using it
 Albuterol (Working / Worked)
 Pulmicort (Working / Worked)
2 Members 8 Posts
 Migraine Headaches
i get migraines after violent tonic clonic seizures as well as when my seizure activity is high since it is constant 
Treatments
 Fiorinol (Somewhat Helpful)
have to take to relieve pain since cant take migraine meds due to heart problems
6 Members 12 Posts
 Depression
  Clinical (Major) Depression
More
 Bereavement
  Loss of a Parent
More
 Fitness Goals
  Improve overall fitness
More


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