Im realllllly slackin here!
July 11, 2008 9:35pm
It's been tooooooo long since I wrote, Ive been slackin! well let's see... I have been introduced to Herxing first hand and I dont much like …
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Rbear66’s Profile
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Recent Activity
July 11
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Rbear66 gave feisty a Hug 9:37pm
Kizi......kizi zizi.......kizi zizi wizi.....KIZI ZIZI WIZII!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! POKE AND RUN!!!!!!!!!!!!!…
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Rbear66 wrote a journal entry: Im realllllly slackin here! 9:35pm
It's been tooooooo long since I wrote, Ive been slackin! well let's see... I have been introduced…
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Rbear66 gave april2 a Hug 9:19pm
APPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPP!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!…
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Journal
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chuggin along
May 21, 2008 12:52am
Im a couple weeks into my meds and Im just chuggin along! Ive had some tummy problems, lots of diarrhea, today and yesterday I was exhausted, I …
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Journal Entry for May 11, 2008
May 11, 2008 3:20am
Well Im back from VA, and gonna start all my meds today, mommy's day, cause Im off sunday and monday so if I get sick , I will have 2 days to do …
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will someone please answer my head!
May 3, 2008 10:48pm
my ears keep ringing and no one is answering! gheeeesh..... here I come VA and not a minute too soon either!
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Hugbook
Hug
It's not what you gather, but what you scatter that tells what kind of life you have lived.great big ole grizzly bear hugggzzzzzzz squishhhhhhhhhhhhhhhhhhh
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Hug
I loved this and thought of you. Knock, Knock - I knocked at heaven's door this morning. God asked me...'My child, what can I do for you?' I said, 'Father, please protect and bless the person reading this message.' God smiled and answered... ‘Request granted'
Hug
HEY CHICA!!!!!!!!!!! HUGGLES WUGGLES!
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good to hear from you, some days we just can't help ourself.people just don't understand unless they have been there.hope you fine better soon.
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Hi How are you doing? Pray all is going well. Have a wonderful week Aron
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Support Groups
Close Restless Legs Syndrome
diagnosed with RLS in 2004 after a sleep study which also gave me a sleep apnea dx.
Treatments
- Prozac Working / Worked
- didnt even know prozac worked on RLS
- Mirapex Working / Worked
- I night without it is he;;
- Clonazepam Working / Worked
- doc started me on mirapex only then wanted to switch me to clonazepam, didnt work by itself, but definetly with the mirapex.
Close Migraine Headaches
migraines since a car wreck in 1990, have gotten worse over the years. Now are complex in nature. Landed me in the ER on more than one occasion.
Treatments
- Aspirin Not Working
- used to take everyday per PCP to prevent migraines??? don't remeber it working
- Caffeine Working / Worked
- helps!
- Compazine Working / Worked
- givin to me when left side went numb. reversed it...dunno why. they said I had had a complex migraine???
- Excedrin Working / Worked
- better than nothing!
- Imitrex Working / Worked
- worked, till 1 of the 5 last ones I had in a week!
- Maxalt Working / Worked
- imitrex works no more, now this is my buddy!
- Midrin Working / Worked
- OMG! knocked me on my butt!
- Naproxen Working / Worked
- Better than tylenol, but wont kick a migraine if it wants to stay!
- Relpax Not Working
- did nuttin!
- Topamax Working / Worked
- on this daily now....geeeez
- Tylenol Working / Worked
- If its a true migraine, pffffft!
Open Endometriosis
partial hysterectomy in 2004, endometrioma (softball size) removed from retro-rectal space along with tail bone (cause it was in the way) 2006 and finally ( I hope) remaining ovary which had a hemmorhagic cyst in it, several other cysts and adhesions (left ovary stuck to wall of abdomen) and the surgeon kindly put my "bowel back where it belonged" 2007. if they must do another surgery in the future, I am going to request a zipper!
Treatments
- Surgery Working / Worked
- X3 secondary to endo. wish I would have known it can reoccur even with just 1 ovary, would have had complete hysterectomy and been done with it!
- Lupron Not Working
- landed me in the hospital with chest pain.
- Oral Contraceptives Not Working
- was bleeding very very heavily so gyn. doubled dose....no help.
Open Sleep Apnea
was having major issues with cognition, was refered to a sleep clinic, told I have severe sleep apnea and RLS. I apparently stop breathing about 44 times an hour.
Treatments
- CPAP Somewhat Helpful
- first night I ever used it slept like a baby , allll night long. now I pull it in the middle of the night, if I even put in on.
Open Multiple Sclerosis (MS)
Blessing in disguise, met some of the most wonderful people due to this dx or lack thereof.......love you guys!
Open Back Pain
started in lower back about 7 or so years ago. My GP referred me to a rheumy, who called it "poly-arthritis" as the pain was also in other joints. tested nemerous times for RA and SLE...always negative.
Treatments
- Bedrest Working / Worked
- Chiropractic Adjustment Working / Worked
- Darvon Working / Worked
- Fioricet Working / Worked
- Flexeril Working / Worked
- somewhat
- Heat Working / Worked
- somewhat
- Hydrocodone Working / Worked
- Ibuprofen Working / Worked
- usually some
- Naproxen Working / Worked
- Relaxation Working / Worked
- Stretching Working / Worked
Open Irritable Bowel Syndrome (IBS)
had 2 endoscopies and 2 coloscopies, have diverticulosis, gastroparesis, GERD and IBS. when the doc asks me if Ive seen a change in my bowel, I rofl!
Treatments
- Avoid Certain Foods / Chemicals Working / Worked
- can't eat peanut butter at night...figure that one out!
- Bentyl Not Working
- made me dizzy and gain weight on top of the fact it didnt help!
- Colace Working / Worked
- sometimes helps
- High Fiber Diet Somewhat Helpful
- you can only eat so much fiber
- Imodium Not Working
- baaaaad idea
- Levsin Somewhat Helpful
- only as needed
- Peppermint Not Working
- useless in my case
- Psyllium Not Working
- saw no difference
- Aciphex Somewhat Helpful
- can't remember why they stopped this one.
- Nexium Working / Worked
- Again, changed my meds
- Zantac Working / Worked
- 300mgs everynight, usually enough
- Protonix Not Working
- made me very bloated
- Antacids Working / Worked
- was drinking it for awhile in between scopes, every 2 hours.
Open Lyme Disease
was being tested to r/o MS , tested pos. for Lyme.
Treatments
- Ceftriaxone Working / Worked
- 28 days IV, def. could tell the diff.
Open Chronic Pain
I have chronic pain that I now know is secondary to Tertiary Neurologic Lyme disease
Treatments
- Chiropractic Adjustment Working / Worked
- has helped in the past, will do again
- Flexeril Working / Worked
- dosent help like it used to
- Heat Working / Worked
- helps some
- Hydrocodone Working / Worked
- can't get because doctors are afraid of dependency
- Lyrica Not Working
- didnt help, too costly, too sedating
- Naproxen Somewhat Helpful
- use in absence of anything else
- Oxycodone Working / Worked
- again can't get
- Topamax Working / Worked
- helps some
- Plaquenil Working / Worked
- no match for Lyme
- Tylenol Somewhat Helpful
- no match for Lyme
Open Rocky Mountain Spotted Fever
tested positive for Lyme through a spinal tap to rule out MS, did blood tests for co-infections and tested positive for RMSF
Treatments
- Probiotics Too Soon to Tell
Open Tinnitus
I have Lyme chronic disease and either as a part of it or something else, I have tinnitus about half the time... would someone please answer my ears?
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