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Took a break for a month Mood
Monday, July 21, 2008

Last month I did not post anything about my pain and suffering. I got lazy I guess. At the same time, jobs started ramping up again. I've gone back to work as a child care provider. I had a very rough time working in a daycare that was in very bad shape, both structurally and personnel-wise. I was let go from that situation after blowing the whistle on the conditions there. Fine by me. I found out the church running the place shut the place down, and that's why I was not asked to come back. 

 

Since that time, I advertised myself to friends and word spread pretty good. Now I have a three-month contract with a local family to care for their infant daughter, and in September, I will go full time for a different family who has a daughter of the same age. In between that, I babysit here and there for people who need a night out. So far, it's been very good for my sanity to be taking charge like this, and using the degree I went to school for! It's been 12 years since I last worked in the field of child care. Good to know I still have what it takes. 

 

In other great news, I FINALLY got word that the company that fired me for having Endometriosis and missing 1-3 days of work each month - that company is SETTLING the labor board complaint! YAY! They owned up to their error, will be changing my status from 'fired' to 'voluntary quit', will give me a positive reference should employers call them, and will be revamping their human resources program on disability training sensitivity. I can't believe it - I never thought they'd go for my demands. I'm SO happy. I wonder too if other people who were being discriminated against finally found the courage to step forward like I did. I really hope no one else who is disabled in any way has to suffer at the hands of that company again.  I even get back pay restored. I'm so excited about this.

 

Today I am bedridden from the pain. But just yesterday, I walked 6 miles (10km) for the annual AIDS Walk charity! I've been training by taking the baby I've been caring for on very long stroller rides. ;)

The pain and bleeding set in after the walk, and I was so thankful that I had the chance to DO the walk and not be in very much pain. I had fleeting mild cramps, that's all. I was so worried that I'd become incapacitated during the walk, that I went and found a wheelchair for the event in case I needed it.

I can't tell you how relieved I became just knowing I had a wheelchair *in case* I needed it. It took such a huge weight off of me. I'm not admitting defeat to the illness - I'm just being prepared to continue onwards and meet my goals and appointments, *despite* the illness. It's a defiant "Oh yeah? You think you got me down for the count? Think again, bucko! I got a wheelchair. What you gonna do now, bitch? I'm still MOBILE." 

It's very liberating. :)

 

Best of all, the wheelchair was 1) FREE (found it on freecycle.org) and 2) folds down and fits in the trunk of my car.  I about cried when I went to the woman's house to collect it. 

 

I think I will post about my wheelchair on the forum - maybe it will help others. 

 

Speaking of helping others, I know I still have to finish my website on 'living with endometriosis'. I know there's one last page I never finished. I'll have to do that this month.

 

I am in a lot of pain at the moment. I'm doped up on Tylenol 3 but the pain seeps through. I am feeling miserable, yet deep down I'm still elated because of completing the Walk and because of the labor board settlement. I am victorious. I must remember this moment.  

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Saturday morning I awoke from nightmares of gushing everywhere and as expected, upon awakening, I really was starting to gush. Thankfully I awoke before bleeding through to the bed.

 

I was bleeding heavy throughout the morning, and at one point turned pale after breakfast of yogurt and fruit. I staggered to the bedroom and curled up on the bed. I wasn’t in much pain - it was just that I was bleeding a lot.

 

I had run out of Ibuprofen 600 on Friday, and so I took 3 regular Ibuprofen pills in case the pain came back.

 

We had a cake tasting and engagement photo shoot scheduled yesterday. I cancelled the photo shoot. I took a nap until around 1pm and then decided I’d try to make it to the cake tasting.

After all, I’d get out of the house for a bit and I’d only be sitting in a bakery shop - I wouldn’t be doing anything strenuous. So I hopped in the shower and got ready to go.

 

We made it to the cake tasting in time, and I was not in pain. I had even stopped gushing. I was just very tired. But I was so glad to be out of the house!

 

Unfortunately during the cake tasting, I ingested a little cake (my man tastes the whole piece of cake, while I poke at the cake and just taste the icing, or I DO taste the cake but spit it back out in a napkin). As a result of accidental ingestion, I felt a bit sugar-crashy and my ears got plugged up. That’s what happens when I have gluten. Thankfully it didn’t last long and thankfully I didn’t ingest enough cake for the yeast ingredients to have an effect on my body. Otherwise I’d have been in the bathroom all afternoon.

 

After cake tasting, we decided that since we were so close to wine country, that we’d hit up a few of our favourite wineries and price out cases of Cabernets, Merlots, Chardonnays and table wines. I was slow in my walking but I soaked up the outdoors and the sunlight. I was happy to be out with my man, even though I was admittedly grumpy after the cake tasting (the woman there was attrocious - she wouldn’t shut the fuck up about HER wedding, about how her husband is a FRENCH pastry chef and only uses REAL ingredients. And she wouldn’t leave the table so we could taste alone in peace. So we simply ignored her as much as we could and talked amongst ourselves while tasting. I asked for buttercream and piping. She said no. I asked for a gluten free side cake. She said they don’t know how to do gluten free. We pointed out certain designs we liked. She wasn’t sure they could do it. We WON’T be going with that place. And then there’s the fact that I had a bit of an allergic reaction, so I was grumpy afterwards.

 

Anyway, so we went to our wineries and did some tasting. It had been a few hours since I’d had any meds, and my last meds were over the counter Ibuprofen, so I tasted some wine. I didn’t do my usual tasting, where I finish the glass. Instead, I took only small sips, up to three sips, and dumped the rest in the whatever it’s called.

 

When we got home, we went to Boston Market to get an easy dinner.

 

 On the way, however, we passed an accident scene.

 

Apparently there’d been a fun birthday party for a little girl dressed in what looked like a wedding dress; sparkly white poufy dress. There was a bouncy castle and a side street was blocked off for the festivities. She and other children and adults were standing on a corner looking aross the street as we approached the intersection. We got to the intersection and turned left to go to Boston Market, and we saw the problem. One of the children from the neighborhood was lying in the street with his head propped against the curb. His eyes were closed and his brow furrowed. There was a cut on the right side of his forehead. There were police in the street but they’d not blocked off the street. I don’t know why we were able to drive right past the scene like that. Some people were holding each other and crying. It was so sad.


I lost my appetite but we continued on to Boston Market, just a block away, anyway, and got our food and left. When we left, a fire truck and ambulance were there, assessing the boy. I hope he’ll be okay. I couldn’t find any news on it last night. I still can’t find any news on it today. :(

 

After dinner last night, my man and I started designing our wedding cake, so the next baker we go to, we can have designs ready to go instead of hemming and hawing and trying to verbally describe what we want. Should’ve done that from the beginning but oh well.

 

I’m off to do housework. I feel better today. Barely any bleeding and no pain.

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Catching up Mood
Sunday, May 11, 2008

The following post is from my personal journal, so I'm pasting it here. This entry is from Friday, May 9, 2008:

 

I was really out of it this morning and felt VERY weak. My friend came over and we went out to the backyard and sat in the sun for a bit. It felt really nice.

 

I had no pain or very little pain for much of the day!

 

I was very tired and weak but so happy to not be in pain, so around 4pm, another friend and I went out to Beverly’s. She drove me there in my car. While ambling through the aisles, I felt a gush and said ‘oh no’.

 

I told my friend we had to go - that I’d be in pain Real Soon Now.

 

I popped a Tylenol 3 on the way home, and when we got back home, I settled in on the couch, but my stomach was upset. I began to shake and feel nauseous. I told my friend that usually this is a bad sign.

 

I’d say within half an hour of being home, the pain set in (This is a long time compared to what happened to me last month when the pain slammed me).


I had gush first, then nausea, then slowly ramping up pain. Then the pain got worse and I got down on the living room floor to do the yoga ‘child’s pose’ like I’m instructed to do for the pain. It helped for mere seconds, then I’d have to sit up and slowly stretch out my torso so to avoid the pelvic and stomach region from clenching from the pain.

 

The living room floor was too hard, so I went into the carpeted bedroom and laid down on my back. This is when the pain level went through the roof, and my body began to really shake and quiver, and I nearly hyperventilated from the pain as tears streamed from my eyes.

My friend sat with me the entire time, holding my hand, asking if I would need anything, talking with me, BEING THERE.

 

She knows - she has Endometriosis, too. She had the same surgery I did and has had relief from it, thankfully. Although she’s got a cyst again, she says she’s not anywhere near the pain she used to be in.

 

I popped another Tylenol 3 and continued to just talk and breathe and cry. Finally after about half an hour, the pain passed and the drugs kicked in, and so we just laid there - she on the bed and me on the floor and then slumped partially on the bed - just talking. I thanked her for being there for me.

 

When my man came home from work, we deliberated on what food to get for dinner, since I’m in no shape to make dinner. My friend said she should get home, so my man drove her to the train station and went to pick us up some food from Boston Market… but they closed for the night! :(

 

So now he’s home and we’re trying to figure out what to do. We have plenty of food in the house but I can’t think up a meal - I’m in no shape. Food. I just need food. I’m so hungry I could eat my cat. DOOD JUST MAKE ME SOME FOOD SHEESH :p

 

Gah. Men.

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