Aftershocks...
September 10, 2008 6:29am
Had to get triggers to stop intense spasms-for the most part they worked. Doctor says the insurance company is playing God with my life (like many of …
It's been a tough week across the globe. Share your thoughts in our new 2008 Financial Crisis support group.
Lynr’s Profile
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Lynr
is feeling Bad
My body is screaming in pain:(
Recently: 11 discussion replies, 3 hugs received more …
About Me
Still a newly-wed! Married my best friend a little over a year ago, April 14, 2007. He is incredibly supportive of me and that is tough to do because I am a terrible patient! We both are chronic pain sufferers and are used to taking care of ourselves and everyone else so having someone care for us takes a bit of getting used to! I am a Educational/Psychology Professional and work with children/adolescents with Emotional and Behavioral Disorders which can be very challenging even on my good days! I am a mother of two wonderful teen aged girls ages 14 and 19. The youngest just starting her freshman year of High School and her older sister just finished her freshman year at College of Charleston in South Carolina. I'd like to say that I have come to terms with my illness but even though my dx is a year and a half-new and funky things will happen;numbness in various parts of my body, thyroid goes haywire, etc. In other words...with lupus-stay tuned!
Interests
I enjoy swimming, spending time with my family, reading, sketching, and listening to music and eating ice cream.Of course I also enjoy and relish an afternoon nap! If my body allows it, I love to take the horses for a ride and go over a few jumps!
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Recent Activity
Today
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Lynr replied to their discussion post Grief or depression? in the Lupus support group 6:51pm
Thank you Kyle Anne, I am seeing a rheumy and have been on the plaquenil, that usually keeps things at…
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Lynr wrote a discussion post in the Lupus support group: Grief or depression? 12:32pm
Hello all, It's been a rough 6-8 weeks for me...the last part of the summer was very difficult for me…
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Lynr gave Patti001 Flowers 7:54am
Right back at ya! Is it nice out where you are today? It's gorgeous out here! Took a day off from work…
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Lynr replied to lups’s discussion post question? in the Lupus support group 7:52am
I have a difficult time with the pills myself because the lupus went after my thyroid and I have a hard…
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Lynr replied to Kyna’s discussion post Out of Meds in the Chronic Pain support group 7:41am
I finally had some time to read this verrrrrry long thread. It had first caught my attention because…
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Journal
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Keeping up....
July 31, 2008 6:03am
Thank you all for your kind words and support during the past week of grief. I'm trying my best to keep on top of the rest and stress so I …
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Journal Entry for July 25, 2008
July 25, 2008 10:12pm
Dear all,
Aside from dealing with the daily issues of chronic pain from lupus and back pain, I got hit with a huge misfortune yesterday...one of my …
This entry is private
This entry is private
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Hugbook
Hug
Gentle hugs to you. Just want you to know I'm thinking of you and keeping you on my mind and in my heart. peace and love ... Kyle Anne
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Flower
Friday flowers to brighten your weekend
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Flower
Sweet smelling beautiful flowers for s sweet Lady.
Kiss
tank u my dear friendxx
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Present
Hugs and best wishes. -Patti
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Photos
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Support Groups
Close Lupus
Recent confirmed diagnosis of lupus of which they feel I have had for awhile. Currently unable to get into remission because I am unable to tolereate prednisone. Recomendation of chemo. going for a second opinion on 8/7 to a specialist in Hartford.
Treatments
- Plaquenil Working / Worked
- appears to help with the rash although I am not doing real well with the eye exams.
- Prednisone Working / Worked
- Have difficulty tolerating even half doses; don't sleep, don't east and I feel like killing everyone in sight!
Close Parenting Teenagers (12-18)
Recently remarried mother of two teen girls ages 13 and 18. Struggling with balance in my life right now-share physical custody with my ex, work full-time,living with a chronic illness (lupus) and dealing with teens on a 24/7 basis as I work at a psychiatric hospital for children/adolescents and then come home to my own!
Open Chronic Pain
Hi, I was diagnosed with lupus (SLE) in January 2007, I knew there had to be more going on than just than just the degenerative disc disorder-as if that isn't bad enough! My back is bad; a blown
Treatments
- Heat Working / Worked
- I love my heating pad but find that moist heat works best!
- Lidoderm Somewhat Helpful
- Sometimes they work for spot areas of pain in the joints during bad weather days.
- Nerve Blocks Working / Worked
- I get facet injections every 8-10 weeks and they work great-epidurals did not help.
- Oxycodone Working / Worked
- The oxycontin helps considerably for long term pain relief-the vicodin wasn't cutting it!
- Physical Therapy Working / Worked
- It really helps but the insurance won't pay for continued treatment. Due to a steel rod and titanium plate in my leg I walk with a limp so I undo the treatment and need to go back every week.
- Topamax Considering
- Didn't know this was a treatment option for pain. Have been prescribed this in the past but not for the pain and I lost alot of weight.
Open Back Pain
Blown L-3, L-4,L-5, and S-1 are herniated. Had major leg surgery which realigned my spine- one sneeze two years later and that was it!
Treatments
- Chiropractic Adjustment Working / Worked
- Has helped in the past.
- Epidural Injection Working / Worked
- These didn't work, I get facet injections every 8-10 weeks now and they help tremendously.
- Heat Working / Worked
- The heating pad feels good but nothing replaces the hot baths or the hot tub!
- Physical Therapy Working / Worked
- I go in every years or so when I absolutely can't stand it any more. The leg surgery that I had has left permanent damage and it causes the right hip to rotate back which curves the lower portion of my back:(
- Stretching Working / Worked
- Have to do this before I even get out of bed!
- Oxycodone Working / Worked
- Was taking vicodin but I was dxd with lupus in January of 07 doc switch me to something I didnt have to take as often. It helps keep the pain to a dull roar.
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Snapshot
Recently …
- 2 hugs given
- 3 hugs received
- 1 discussion post
- 11 discussion replies
