nonibaby's Journal

Steph ate a good dinner last night for the first time in a while, and a good breakfast this morning. She also slept through the night without waking up or wetting the bed for the first time since we've been home. Since the seizure her speech has been even more affected than before. She tries to say things, but can't get them out. I can definitely tell she wants to say something. We're encouraging to use her Dynavox to tell us things, but in general her thinking is even unclear. She'll say silly things like, "when you die, I'm going to die with you." She seems to be incontinent all the way around now. In the ER they said she had a slight urinary tract infection and she's been on an antibotic since we got home, that may be causing some of the problems, ie, eating and incontinence. Although this morning she was shaking more than usual, nearly like the typical parkinson's tremor which she really hasn't had before. Two years ago when a similar "episode" occured that they said was not a seizure, she developed hallucinations ... she had "friends" show up in her mind that we didn't know and angels were talking to her. That's when we put her on the Seroquel. I really, really hope that doesn't happen again. I felt like I was in the twilight zone. She would want me to answer the door every five minutes to let her "friends" in. I don't know what the future holds or what's in store for her, but it scares the hell out of me and it breaks my heart for her. We are just trying to take things hour by hour and hoping that she will stabilize soon. Thanks everyone for your care, concern and blessings.