Journal Entry for February 2, 2008
February 2, 2008 11:18pm
Okay, here I have to say, once AGAIN, wow has it been a while since i have been on here. Ben had to have surgery on his knee yesterday, he had a …
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Wendy’s Profile
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About Me
I the mother of a 3 year old boy with CF. His name is Kelly Joseph (we call him Joey) he has a twin sister named Kayla.I also have 4 other children ages 22f, 21m, 17m, 16m. and a 20 year old daughter-in-law and a grand-daughter(almost 3 months) My husband and I have been married for 23 years. My Greatest accomplishment in life is raising my children to be happy, confident and loving children of our lord Jesus Christ.
Interests
I love to spend time with God, my Family and friends. There is nothing more important. I love to write, draw and read. (although I haven't been able to do any of them for a couple of years) I love music and enjoy singing.(only in the company of myself or my kids) I love the spring and summer.
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Recent Activity
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Journal
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Journal Entry for January 18, 2008
January 18, 2008 12:29am
Man I can't believe how long its been since I have written a journal entry. It has been pretty crazy around here. Joe has been doing pretty well …
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Journal Entry for November 10, 2007
November 10, 2007 10:25pm
Much better today. Joey is doing alot better. He still sounds a little gunky at night but he is feeling alot better, I can tell. I hope everyone else …
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Journal Entry for November 4, 2007
November 4, 2007 8:47pm
Another long night. Listening, wondering ,waiting. Is his breathing going to slow down? Can I prop him up just a little higher so his nose can stay …
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Photos
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Support Groups
Close Cystic Fibrosis
I am the mother of 6 children, 4 biological and a set of twins that my husband and I inherited from my brother, almost 3 years ago. My nephew was diagnosed with CF when he was 2 months old. His twin is a carrier but she does not have the disease.We have learned a lot in the last 3 years but I always have questions.
Treatments
- Axoren Working / Worked
- Joe started on the vest 10 months ago. I LOVE it.He uses it 2 times a day for 20 minutes.
- Neupogen Working / Worked
- he uses pulmazyme 1x a day
- Filgrastim Working / Worked
- he uses this 2 x a day
- Niaspan Working / Worked
- he uses this 2 times a day
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