I have been officially disabled since 2002 from MS. It has taken me years to come to terms with this illness, to even believe I have it. I've gone from NJ to SC, a stop in IA, to CA. I have most of the problems I used to help other people with. I thought I understood but I guess you don't get it until you get IT. AND BOY DO I GET IT.
I love traveling the USA and MS will not stop me. These days the closest I come to my Bliss is in nature. The beauty of the world. It may take me a little bit longer and I may not remember some things like your name or what town it is, but I do my best to enjoy the moment. I like to read, knit, hike, (I should say walk), and photography. I try to work every day to build up new brain pathways.
MacT wrote a journal entry: REAL FRIENDS MAKE THE DIFFERENCE 4:08am
tHE BEST AND GREATEST NEWS IS MY FRIENDS c---- IS REALLY LOW . HAS DROPPE. HAS CHANGED FOR THE BETTER.…
MacT changed their mood to Good 4:08am
MacT wrote a journal entry updating their play piano comfortably goal 4:02am
tHIS HAS BEEN A LONG WEEKEND WEEK.-----------tHE PHARMACIE CONFUSED MY MEDS WHICHWAS NO BIG DEAL. AND…
MacT changed their mood to OK 4:00am
MacT wrote a journal entry updating 2 goals 7:46am
Today I played the piano I still can't find a Motzart piece in Eb. I relaxed more while playing.…
October 8, 2008 4:08am
tHE BEST AND GREATEST NEWS IS MY FRIENDS c---- IS REALLY LOW . HAS DROPPE. HAS CHANGED FOR THE BETTER. THE CLOUDS HAVE PARTED. THE SUN IS ON ITS WAY. …
October 8, 2008 4:02am
tHIS HAS BEEN A LONG WEEKEND WEEK.-----------tHE PHARMACIE CONFUSED MY MEDS WHICHWAS NO BIG DEAL. AND GOT STRAITED OUT WITH A LITTLE OF MY FOOT …
October 4, 2008 7:46am
Today I played the piano I still can't find a Motzart piece in Eb. I relaxed more while playing. Still haven't touched to harp. Today I went …
October 2, 2008 5:29am
I slept late woke at 2 or so. its harder to start the day - get it going. I went swimming after cleaning the poool which is enough to make me …
October 1, 2008 3:12am
Concerning my goals; I played the piano about 3-4 times this month. I have avoided the harp. but I intend to get back to it.
I have been …
Thanks so much for the hug!! Have a wonderful day!
I am very proud of you!! Any goal that can be achieved is a plus in our lives!!!
Just me again and havent heard from you in so long and let you know that I was thinking of you and hope to hear from you soon.. Take Care of yourself!!! HUGS--Mary
How are you doing? We havent talk in along time and was hoping your doing okay. I dont see you much on here is that so? Are you dealing with issues of your own.Well you take care and I am sure thing will be better. I am going to bed. Sleep tight and talk to you soon.. xxxooo Mary :-)
Where have U been? Haven't heard from U in a LOOOOOOONG time!!!! How R U doing? I have to have a lumbar punture next Tuesday. Last Tuesday I had an MRI. My new neuro feels I DO NOT have M.S.! Can U believe it, after all these years!!!!! So we'll just see.... I will keep you posted if you're at all interested....? Let me hear from you!!!!! Hugs, Nancy
About 7 years ago I thought I was losing my mind. My co-worker kept telling me to go to the Dr. I was confused, repeating myself, not knowing what I said or did, not to mention the fatige. The Doc treated me like a hypocondreac each time I went.Finally a nurologist gave me an MRI and found I had leisons in my brain. MS (sorry about the spelling)
My sister has Lupus. No one else in the family history- Lupus nor MS, which I have. She was in denial even the 2nd hospitalization. Till they haded her a big book with a long list of symptoms of Lupus- She had the worst of them. after she got out og intensive care that time they gave her Disability for while. She worked got sick and has applied for SSD again. I heard that there is connection of sisters with Lupus and MS. anyone heard that?
I have always been a night person. I have always liked to sleep late and stay up late. since getting MS it seems I have no choice in the matter. TV and Computers keep me up or just my raging mind. Then I can fall asleep with no notice and rely on Provigil to stay awake and get me out of bed. It is a hard way to live even if I am on disability and don't usually have commitments to keep. My life is scheduled from 1pm to 3am.
