The Powerful Words
June 13, 2008 4:45pm
The words that kept me going: Belief, Strength, Determination, Endurance, Resiliance, Arrogance, Perseverance. Confidence, Tenacity, …
goosetip’s Profile
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About Me
- secondary progressive MS. dx'd late '90s. **The photo: represents the life we have. Lukemia in remission as of June, '08.
Interests
- a part-time wannabe poet and writer; previously commercial photographer; previously a department manager for the top-rated professional photo supplier/service provider in Canada. Now on medical retirement/LTD.
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Recent Activity
June 26
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goosetip replied to LibbyinCT’s discussion post I LOVE HAVING MS!!!!!!!! in the Multiple Sclerosis (MS) support group 1:18pm
kinda takes the fun out of the 'net. It used to be a nice place to be. Zaba does not cover Canada but…
June 20
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goosetip replied to april2’s discussion post Condolence Card For Spyder....... in the Multiple Sclerosis (MS) support group 11:45pm
I'm with you, in heart and spirit.…
June 19
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goosetip replied to lilirose’s discussion post hey in the Acute Myelogenous Leukemia (AML) support group 9:51pm
Seven months; 4 months of chemo (2 sessions), 3 months physio rehab. I'm in remission and no evidence.…
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goosetip replied to donnainct’s discussion post LAST STAGE OF MS? in the Multiple Sclerosis (MS) support group 9:47pm
http://www.copaxone.com/aboutMs/typesMS.aspx may supply answers and discussion.…
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goosetip replied to Baboo’s discussion post Indigo/Cindi's friends in the Multiple Sclerosis (MS) support group 9:39pm
Cindi - this is disturbing, sad news. You're in the right place for care. I'm with you as you were with…
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Journal
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Journal Entry for June 8, 2008
June 8, 2008 2:55pm
Sunday afternoon
- MS plays games with my memory, thoughts, emotions. Just as it's supposed to. I've cried a lot since being home. …
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home after 7 months
June 7, 2008 7:32pm
i'm back home. Strange place to be. Where i have been shall haunt me for awhile.
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Journal Entry for May 17, 2008
May 17, 2008 3:23pm
Saturday, May 16-
- i'm still here. Looking good. Since Hillcrest Rehab Centre has no computer access for patients, i use the public library. The …
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Journal Entry for May 1, 2008
May 1, 2008 7:12pm
Thursday
- On Sunday, we went on a long walk back. We strolled many side streets. Throughout the walk, my sister made recognition of much of the new …
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Hugbook
Hug
I was just looking through Gooses journals. . .I noticed something wonderful, since January 16, 2008, in every journal entry, HE WAS SMILING! It warms my heart, and makes me smile. . .yes. . .smiles are contagious. : )
Flower
i miss you my friend...sigh.. luv heather
Flower
Im a bit behind in reading all this. Goose is such a wonderful person, he will remain in my heart and wont' be forgotten.
Hug
I am so sorry for the loss of Goose, to his family and all of his closest loved ones. He seemed to be such a caring soul and loving friend, and the world won't be the same without him.
Flower
HI UP THERE GOOSE. I JUST HEARD YOU LEFT US. YOU WILL BE REMEMBERED AND MISSED. I AM SORRY I COULDN'T MEET YOU THAT WEEKEND WITH HEATHER BECAUSE OF MY HEALTH. I STILL FELT LIKE I KNEW YOU WELL. THANKS FOR BEING A FRIEND. REST IN PEACE MY FRIEND. LOVE MAGGIE
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Photos
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Support Groups
Close Multiple Sclerosis (MS)
Type: Seconday Progressive MSFirst visible signs in '93. RRMS in mid '90s. Dx'd '98. SPMS in '02. Left job '03; I made the decision to leave. On LTD.
Treatments
- Novantrone Working / Worked
- IV every 3 months for 2 years. Chemotherapy. Useful for RR(SP). Has restrictions and limitations. Reduced exascerbations. '03-'05
- Rebif Somewhat Helpful
- Started injections Nov.'06. Signs of improvement in Feb.'07. Caught in paper snafu April '07; stopped injections end of April.
- Effexor Working / Worked
- Keeps my mind and emotions stable and focussed.
- Prozac Working / Worked
- Works similar to Effexor. Not to be feared.
- Ativan Working / Worked
- Another one for my mental health; for anxiety.
- Trazodone Somewhat Helpful
- For bedtime; lets me get some sleep. Has foggy-head morning side-effect. Stopped taking it. I now will only use Zopiclone.
- Lunesta Working / Worked
- Also used for sleep. Less aggrevating than Trazadone.
- Corticosteroids Working / Worked
- A quick IV 'fixer-upper' for early RR. Can be administered via home-care. Not to be overused. Used before Novatrone.
- Crying Working / Worked
- An outward expression of my displeasure with my situation. I do it. I endorse it.
- Psychotherapy Working / Worked
- Somebody to keep me in check.
- Ibuprofen Working / Worked
- Minimizes the effects of Rebif.
- Red Wine Working / Worked
- Minimizes the effects of anything.
- Mirapex Working / Worked
- for the shaky leg at night. Calms it down so i can sleep.
- Inderal Working / Worked
- For calming Essential Tremour of hands and head. aka: propranolol
Close Multiple Sclerosis (MS)
Type: Seconday Progressive MSTreatments
- Novantrone Working / Worked
- IV every 3 months for 2 years. Chemotherapy. Useful for RR(SP). Has restrictions and limitations. Reduced exascerbations. '03-'05
- Rebif Somewhat Helpful
- Started injections Nov.'06. Signs of improvement in Feb.'07. Caught in paper snafu April '07; stopped injections end of April.
- Effexor Working / Worked
- Keeps my mind and emotions stable and focussed.
- Prozac Working / Worked
- Works similar to Effexor. Not to be feared.
- Ativan Working / Worked
- Another one for my mental health; for anxiety.
- Trazodone Somewhat Helpful
- For bedtime; lets me get some sleep. Has foggy-head morning side-effect. Stopped taking it. I now will only use Zopiclone.
- Lunesta Working / Worked
- Also used for sleep. Less aggrevating than Trazadone.
- Corticosteroids Working / Worked
- A quick IV 'fixer-upper' for early RR. Can be administered via home-care. Not to be overused. Used before Novatrone.
- Crying Working / Worked
- An outward expression of my displeasure with my situation. I do it. I endorse it.
- Psychotherapy Working / Worked
- Somebody to keep me in check.
- Ibuprofen Working / Worked
- Minimizes the effects of Rebif.
- Red Wine Working / Worked
- Minimizes the effects of anything.
- Mirapex Working / Worked
- for the shaky leg at night. Calms it down so i can sleep.
- Inderal Working / Worked
- For calming Essential Tremour of hands and head. aka: propranolol
Open Single Parenting
I'm also a single father, divorced. My daughter is 19, first year university. She became a 'shared child'/joint custody 18 years ago. Since it was her mom's choice to leave, i had to restructure my life. Nine years ago, i had to relearn: diagnosed with MS.
Treatments
- Crying Working / Worked
- accept it as a pain reliever, stress reliever.
- Psychotherapy Working / Worked
- important to do!
Open Diabetes Type 2
after MS diagnoses i was told diabetes 2.
Treatments
- Metformin Working / Worked
- a part of my med regimen.
Open Acute Myelogenous Leukemia (AML)
APL dx'd in october '07; started chemo in november '07. In remission december '07.
Treatments
- Chemotherapy Working / Worked
- chemo i barely remember. Helped me.
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Groups
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Snapshot
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