Terre is home
August 22, 2008 8:49pm
I am home from the hospital again. Still having problems with Mito Strokes and Complicated Migraines which leave me diabled on the right …
Progress
35 %
terre’s Profile
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terre
is feeling Bad
About Me
I am a professional pet sitter with my own business. I adore animals and they help me make it through my days. I used to have a booming business and because of the Mitochondrial disease I have had to cut my business to almost nothing. I have 4 cats, my dog died last Dec 14th. My roommate has 2 dogs though they are wonderful. I have 4 college degrees...medical in nature. Loved the pet sitting to much. I should have been a vet like I thought about.
Interests
I am totally recharged by hiking and camping and being outside. I love to garden. Music and nature, that with animals and I'm ok. My pets are my life.
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Recent Activity
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Journal
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Sorry for the long abscence
July 5, 2008 8:44pm
Thanks to all who have been hugging and writing in my abscence. I am extremely ill right now. Still having Mito and Carn. Deficiency, now …
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Journal Entry for January 24, 2008
January 24, 2008 10:15pm
having some good & bad days. really bad back...had multiple epidural injections on tues., 1/22 seeing many new doctors, a new …
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Hugbook
Hug
HELLO TERRE, IT'S GREAT TO KNOW YOUR BACK FROM THE HOSPITAL.I TOOK ME 5 MONTHS TO GET BACK THE RESULT FROM MY MUSCLE BIPOSY,PUT EVEN THOU THERE NOT 100% SURE.I STILL HAVE ALL THE MUSCLE PAIN, AND JUST DEAL WITH THEM,I TAKE NO MEDICATIONS FOR THEM,BECAUSE OF MY KIDNEY DISEASE.I TRY TO KEEP MY MIND BUSY WITH OF COURSE OTHER STRESSES,SUCH AS WORK,MY DAUGHTERS DIVORCE,MY SON'S LOSS OF JOB ETC.BUT I WILL BE SO EVER GREATFULL IF I CAN KEEP MY KIDNEY FUCTION FOREVER,AND NOT HAVE TO WORRY ABOUT KIDNEY TRANSPLANT.I AM ALWAYS THINK AND PRAYING FOR YOU.MIRCLES DO HAPPEN,AND HOPE IT HAPPENS TO YOU.TAKE CARE OF YOURSELF. LOVE YA WEDAD
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Prayer
Terre, A great big Hug & Prayers are with you. I know what you are going through with this MM disorder. I have the same thing. I am sorry to hear about the death of your dog.. Your picture with the two of you look adorable. I have 2 adorable small dogs. One just acquired diabetes and I must give her insulin 2 X/day and check her blood sugar by sticking the inside of her ear. She is a good girl though. She comes right to me and sits there patiently while being tortured shortly. I give her a diabetic treat afterwards which makes it slightly easier on her. Know you have someone else in your corner Terre. If you ever want to write, my name is Marie. Take care my MM pal.
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Prayer
HI TERRE, I WAS SO HAPPY TO HEAR FROM YOU.I WILL FOREVER KEEP YOU IN MY PRAYERS. LOVE YA WEDAD
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Photos
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Support Groups
Close Mitochondrial Diseases
In July of 2006 I was diagnosed with a Mitochondrial Disorder, Carnitine Disorder and whatever else. The doctors have told me "I'm to complicated to actually diagnose." I don't know what form I have I only know I have progressively gone down hill quickly. I have multiple organ failures and muscle and nerve damage. But I'm hanging in and I will not leave this earth without letting people know this disease does exist. I am doing everything I know on my own.
Treatments
- CoEnzyme Q Working / Worked
- In doing research I came across a paper done by a Cardiologist which talked about increasing Q10 to as much as 800 mg/day. I tried increasing and in worked. I am at 600mg/day. Also Carnitine I increased to 20ml 3x/day and that has helped. I only do this stuff because noone else knows what to do for me....I am my own ginny pig. Don't do this stuff without talking with your doctor.
Close Restless Legs Syndrome
Since I have Mitochondrial disease and with that problems with my muscles I just thought that is what was bothering me. It always got better when I got up and moved around until my muscles from the disease part couldn't take the movement any more. I couldn't sleep, I was only getting a couple hours of sleep and was miserable.
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Snapshot
terre hasn’t been active on the site in a while. Why not give terre a hug?
