risingsun12956's Journal

today is turning out like every other day. kinda boring and on thecool side. highs today supposed to be 77. not too bad i can take that now. its the heat that none of us can stand. i like weather days like this but it is not very good for drying clothes and i dont have a dryer, hubby dont want me to have one cause it runs up the electric bill. i think sometimes he likes to hoard things. i dont know i have enough going on in me to really worry about all that material things.  i love my scooter i ride it whenever i can get it outdoors to go on it. it is really heavy for me to lift up on it so my son takes it out and puts it back away for me. so this summer he is working 5 hours a day during the week so i have to wait to take it out for me whenever he isnt going to be busy we ride together. it is nice to spend some time with him even though he dont want to hang out with the mom, he much rather be hanging out with his friends. so i dont ask too much. i talked to my MS doc yesterday. she wants to knopw why i am still with the twitching of the head/neck. i told her i dont know. she asked me if i am all through with taking the Gabapentin, i said yes a week ago. so now she wants to have me take an electrode test f my neck to see if what she thinks i have. she thinks i might have plaque on my neck and spinal cord. sheesh, if it aint one thing its another with this disease. so all i have to do is to wait for her to call me and let me know what she has worked out for me. this is very annoying this twitching of the head. it does come with headaches. sometimes really bad headaches too esp. at night when it is bedtime when i really get the migraines. something new with this PPMS. i think there is a next step after the PPMS, i think it is RPMS and thats it i think. or maybe its this one PPMS is the last stage. it sucks that there is not no medication for us who has the PPMS. but i am still living and i know that is the most important thing. i got to see my grandson again after 3 months. that is all the medicine i really need is my grandson and my family. family and friends means more to me than anything else in this world. well i waited long enough to have the doctor to call me back with the time of that test so i will call them tomorrow. there is nothing like playing phone tag with these people. i think we all go through that lol phone tag. youre it. lol. oh i dont know. i think this is enough for me for this page in my journal. maybe i will write some more tomorrow if not whenever i get back to this computer again because i find out that i am not on this computer as much as i used to be. things are changing pretty fast for me with this disease. i hope everyone else here has a good day.

that other post i put up for all to read was from the other night when that happened. i felt so stupid when that happened too. anyways just to let everyone know, i met up with the lady from my ms chapter yesterday and gave her my application for a scooter from the chapter. i am hoping that it goes through and i am able to get the scooter because i so desepaterly need it. in my area there is no local transpotation and the only way to get around is either, walk (and i cant do that), um ride your bike or drive and i cant not do any of them. so i checked into it and the leader from my chapter said that it is only mandorty that i fill out the necessary paperwork and then i will be getting a brand new one. wow. i am the type of person not to ask for things but this she said i need so she said it will take 10 to 12 days to get one. so now i have to do is wait. i hope i do get it soon cause i am going to a park on the 11th of august and it would come in handy there. i do have a regular wheelchair it used to be my mom in laws. so in case the scooter dont come by then i guess i will have to use that. even though, my legs hurt and arms hurt to use it. it will be an all day event. so i will be so tired and  so sore if i have to use the regular chair. so wish me luck my friends and i will let everyone know when i do get it. i am so excited cause no one has ever done anything like this for. so with that i would like to thank the ms plattsburgh, ny chapter and its leader laurie. she is a great person. just from meeting up with her and talking to her i can tell plus we email each other back and forth. she is a dear person and im glad to call her one of my friends. i have met so many nice people throughout my ordeal on this site and i just want to thank each and everyone of you for listening to me by reading my journal. i write much because i dont use the computer allo that much anymore. so when i do get online i go and check my messages and my hugbook and i love giving out hugs. lol. so with this all being said. i hope everyone is having a good day and sure we're all in pain but we cant let that get us down even at times i know i want to just give up i turn and look to see that my friends here is there to welcome me and raise my spirits.