I Can See, I Can See, I Can See!
July 24, 2008 2:46pm
Progress
5 %
wannabewell’s Profile
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wannabewell
is feeling OK
Listening to Dr Horrible play in the next room(you'd hafta be a Joss Whedon nerd to get it.)
Recently: 40 journal comments, 24 hugs received more …
About Me
I am married with no children(childless by choice) and recently relocated to NorCal from Seattle Wa.** I am the proud "mama" of a 2 year old Rat Terrier/ Chi mix named Tiki. We got her at a shelter last Summer and she is adding much needed light to my life.** I would be an artist or illustrator if I could work. I pursue these interests when able and am trying to teach myself to make art on the computer and set up a home office and studio.** I enjoy science fiction, fantasy, and horror in film and literature as well as historical fiction. I am currently investigating Buddhism as my need for spirituality in my life grows. Often the subject matter of my art depicts these esoteric interests.** I joined DS since I couldn't find a "real life" support group and longed to connect with others on a deeper level. I am currently looking for good doctors, reliable info and emotional support.** I often use voice recognition software to limit my time keyboarding, so please be patient with me as I get better with it and excuse my bad typing when I don't. I sometimes blow hot and cold with my online social life so if I don't respond immediately, it means I'm experiencing technical difficulties, either my own or my computer's. :-)***I do not accept friends requests or respond to ppl who are: under 18, are in abusive relationships, are addicts or members of a mental health comm and in extreme crisis***Sorry can't deal with the drama**
Interests
Art, Animals, Buddhism, Music and Theatre, Interior Design, Web/Graphic Design, Home Improvement, Science, Nature, Philosophy, Mythology, Travel(if I could), Anthropology, Archeaology, World History and World Religions. I'm a voracious reader of these topics and a Scifi/Fantasy/Horror fan. I'm also a PBS/History/ Discovery Channel and HGTV junkie. :-) Yeah, I have lots of spare time to read and watch TV thanks to CFIDs and Fibro
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Journal
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Hugbook
Hug
Thanks for the encouragement Shell! I'm glad it's motivating to other people. I was yo-yo-ing for for a while there and not sure if I was ever going to make it! If it's motivating others, well that's just a great side-effect that I didn't anticipate! I'll be here to root you on if you do it! Hope your air is getting better! Love ya! Beverly :)
Flower
Dropping by with some flowers and a hug.Hope you have a great weekend!Hugs...Lesa
Hug
The first time one of those psycho, destructive, little hellions crawls into your lap, looks up at you with those big eyes, and purrs like a motor...you're toast. You're done. They have adopted you, and they will never let you forget it. When it suits them, of course. =8-)
Hug
Well it sure feels like Hell to me! But, I know you are in a much hotter place and you are surrounded by fires, and having trouble breathing... I so feel for you! It's GREAT in the house with the AC... absolutely fantastic. The thing is, you forget and go outside and almost pass out from the heat! It gets up to 42 or 44 here regularly... I'm just never out in it! (My momma didn't raise no dummies.) I'm glad the Vicodin thing won't be a problem. Have a great weekend! And thanks for all the support with the comments you leave on my journal - just love ya Shell!
Hug
Yay! For the new glasses!!! Is it a bright new world? It looks totally different when I wipe mine off and all the little dots go away! LOL
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Photos
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Goals
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Support Groups
Close Chronic Fatigue Syndrome
I've been ill most of my life and been to several specialists and had just about every test done imaginable. I was never given a diagnosis of CFIDs until about 2 years ago after finding a clinic in Wa that specializes in treating it. Now, I am looking for new doctors in a new state. Doctors who understand Epstein Barr and are up on current treatments. I don't want to ride the "specialist train" again but would consider seeing a counselor who deals with chronic illness.
Treatments
- Ambien Working / Worked
- Ambien helped for while, no longer as effective. Switched to Lunesta.
- Chiropractic Adjustment Working / Worked
- Has always been helpful to me for my headaches.
- Cymbalta Not Working
- Didn't help my pain and deadened my sexual responses, so I stopped it.
- Lunesta Working / Worked
- Puts me down and keeps me down. I can get about 6 hours of sleep with this. Had to fight Medco to cover it.
- Pain Management Clinic Not Working
- They offered some PT, acupuncture, trigger point injections, biofeedback and prolo therapy. None of it helped. No narcs were offered.
- Psychotherapy Somewhat Helpful
- Since my core issue wasn't depression but illness, it never really helped. I was given some coping skills tho.
- Reflexology Working / Worked
- It feels good. :-)
- Symmetrel Working / Worked
- Helped with joint pain.
Close Environmental Allergies
Type of allergy: Multiple Chemical SensitivityI've always had allergy and sinus problems. I went to alternative medical practicioners in the 80s and was told I had "Envrionmental Illness"and Candida Albicans. Oral Nystastin and food restricted diet didn't help.
Treatments
- Allergy Shots Not Working
- Inhaler Working / Worked
- Helps with the wheezing and coughing
Open Chronic Pain
Had pain most of my life, especially migraines. Just Dx with CFIDs and fibromylagia. Have nerve and joint pain, nothing seems to help
Treatments
- Chiropractic Adjustment Working / Worked
- Only thing to relieve my headaches
- Lyrica Working / Worked
- Too sedating, impaired my mental function so I stopped taking it
- Acupuncture Not Working
- Didn't help at all
- Hydrocodone Somewhat Helpful
- Takes the edge off somewaht but makes me itchy
Open Fibromyalgia
I'm one of those "lucky" ppl who has fibro AND CFIDs. I know I have EBV but I also have the pain hypersensitivity that seems to characterize fibro.I have had pain relief by combining diff meds into a "pain cocktail"
Treatments
- 5-HTP Working / Worked
- It stabilizes my serotonin levels
- Acupuncture Not Working
- Hydrocodone Working / Worked
- Only thing that helps with pain, takes the edge off.
- Lyrica Somewhat Helpful
- Had to quit due to side efx
- Robaxin Somewhat Helpful
Open Sleep Apnea
Dxed with sleep apnea after 2 sleep studies and take home titration studies. Still trying to find mask that fits comfortably.
Treatments
Open Restless Legs Syndrome
Dxed with RLS and sleep apnea, part of Fibro and CFIDs
Treatments
- Mirapex Working / Worked
- Made me less nauseaous than Requip and seems to be just as affective
Open COPD & Emphysema
Thought I had allergic asthma but turned out not to be. Just told it's COPD. Been smoke free for over 3 yrs, no improvment.
Treatments
- Advair Working / Worked
- It helps
Open GERD & Heartburn
Treatments
- Antacids Not Working
- Avoid Certain Foods / Chemicals Working / Worked
- wine, chocolate, other food will flare the burn and reflux
- Dietary Modification Not Working
- NO matter what I eat, I get pain
- Nexium Not Working
- Gave me diarrhea, had to stop
- Prilosec Somewhat Helpful
- Took the edge off
- Raising Bed Position Somewhat Helpful
- Tagamet Not Working
- I was DX with ulcers and given this, didn't help
Open Irritable Bowel Syndrome (IBS)
Treatments
- Acidophilus Not Working
- Avoid Certain Foods / Chemicals Somewhat Helpful
- Bentyl Somewhat Helpful
- Imodium Somewhat Helpful
- Take as needed if needed to stop a bad attack
- Miralax Somewhat Helpful
- Probiotics Not Working
- Gives me diarrhea
- Psyllium Somewhat Helpful
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Groups
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Snapshot
Recently …
- 19 hugs given
- 24 hugs received
- 3 journal posts
- 2 photo uploads
- 5 discussion replies
- 1 advice reply
- 40 journal comments
- 7 photo comments
