basia's Journal

Well today is my first journal entry. I'm doing this because I have nobody else who knows exactly what it's like to have a disease like this. one day I'm fine and the next I'm in bed and I can't move.  I waitress so it's a very physical job, and I can only handle working about 3 days a week if I want to be able to function and take care of my home and husband.

I've always had VERY physical jobs from being a stage hand to running multiple day care centers to cutting hair and not having the ability to even go out and plant in my garden is sheer torture to me.  My husband is very supportive (as much as he can be without fully understanding), but even he gets frustrated.  I'm so tired of being sick all the time but I just don't know what to do anymore.