redsilverfox's Journal

Journal Entry for May 16, 2008 Mood

Friday, May 16, 2008

I have been busy all week as all disability groups and disability workshops and forums are going on lately. I went to a Fibromyalgia and Chronic Fatigue Syndrome Day at our local Parliament and they officially declared Fibromyalgia and Chronic Fatigue Syndrome Day on Monday May 12 and in the Parliament Media Room they recorded a 15 minute film clip with a lawyer and person with FM/ME and a Dr. who treats both Dr. A. Bested spoke about these illnesses, and the M.P.P. (Ontario Gov't) person who helped them arrange the day and proclaimation in Parliament. On Tuesday, I went to a Education and Dialogue and to hear a speaker who has some kind of invisible disability and went from poverty to running a Multi-million dollar business operation, Ian Hill, recognized across North America as a world changer. This was put on by our Disability Social Services and Employment Services and supports, including Toronto Business Development Centre = starting your own business with Gov't support agencies, etc. It was interesting and we got bus tokens and a meal. They have been doing these all over the province of Ontario and will hit every city, gradually. Wednesday night I had my local Fibromyalgia Support Group meeting and filled everyone in on the FM Awareness Day for those that missed it and told them we can get a free video clip of the the media clip, that by the way Not one T.V. station aired! ******* And one person told us about a FM study for a new machine in North America to develop a device called CNP (Complex Neural Pulse) that Toronto, (Ontario)- based "Fralex Therapeutics Inc." was formed to further develop, that 2 Docs developed and researched & over the course of 11 clinical trials and more than 300 subjects have tried. There are some clinical trials still going on and I called to participate in but, I called today and the person is not in. But I left a message for her to call me. This is a long holiday weekend for us the past Queen's birthday, so I will hopefully get a phone call on Tuesday. *** Thursday I got caught up on errands and went to a Community supper. Today, Friday, I did some phone calls and E-mails, and went at a slower pace.

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Comments

Sounds like you are busy. I hope you get to participate in the trial. HUGS!

Testycatlady
Wow..you have been busy. Keep up the goot work but remember to take care of yourself as well. Hugs. DT

dakotatears
Good job! Keep up the good work. Don't wear yourself out though. Let us know how everything goes. Hugs, Beverly :)

heybev13
You're definately making me more aware of fm.My mum has it and until I joined this site I never really gave it much thought.Look after yourself too,I know these two illnesses cause a lot of pain.Hugs xxx

susy
glad you got to join in the fibro day ,would have loved to have been there!to actually hear it acknowledged as a real complaint ,and not just a figment of our imagination ,yey!!
take care ,sounds like a rest is in order after your busy week!
enjoy the holiday weekend ...hmmmmmmmmmm ,how come us brits dont get it??!!lol.
love and hugs ,hope u get that call back--lets us know ok???xoxoxoxoo

Rocky7
Yeah! and why May when her birthday is 23 APril. she is weird tho, she has 2 birthdays. stupid isnt it. I am pleased that you went to parliament and saw that. shame that the media arent interested. It was quiet here too, I sent 2 emails out, one to the fma.uk asking what they are doing for fms aware day, no response andI sent a personal email to a support group asking the same, nobody bothered to reply. SO you are v lucky to have a group yu can actually go to.

Vonny02
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butterfly888
Fantastic and very interesting! Thank you for participating in this day from all of us fibro and CFS patients. You are a wonderful advocate. Keep on keeping on. Love, Sheila

sheila1
Such a busy girl! You take such good care of yourself, honey. I can't wait to move to Canada!!!!! Sending you love and all the positive energy in the world...
Jessica

sleeplessrn
You have been a very busy girl. If you don't take care of yourself no one else will. It is great that you are keeping up on all the latest technology and trials. Keep up the good work.
Mary

mommamav
Good, don't you stay so busy? That seminar/day program you went to about CFS/FMS sounds wonderful. Unfortunately, we have very few in this area with one or both of the above mentioned disorders, so we don't have anything around here like that. Closest may be Nashville, and I do well to drive here! Haha. You take care of yourself.

When you said they declared that day FMS/CFS day, was it nationally? Or only for that center?

KAnne1989
Well done, I am proud of you.

horsenut