SmilingHope's Journal

Still feel bad.  Went to Support Group Tuesday evening.  Used cane, could barely walk.  Balance is off, legs are weak.  Cried during the meeting.  Everyone said crying is good.  So, why do I feel like I'm feeling sorry for myself when I do it? 

Here's my dilemma.  Solumedrol one day, once a month used to work for me.  Got strength back.  Able to put wheelchair away, didn't need it (unless out shopping).  Had a dose 5/25 and I'm currently struggling with walking/moving.  Need wheelchair to get room to room, stairs are hell and at times I've scooted down and up them, on my rear.

Called Neuro.  He called Infusion Svcs.  They're coming out tomorrow and I'll get a 3-day treatment instead of my usual 1-day.  So, I'll know conclusively if Solumedrol is or is not going to help me anymore.  Cross your fingers!  It is so darn hard to be positive! 

Alright, I'm done.  Off to bed.  Take care!