READY 2 WALK
August 6, 2008 6:55pm
JUST GOT CUSTOM-MADE W/C 1 WEEK AGO YSTRDY. GR8FUL 4 THIS. NEED SUMMR OVER 2 STRT PT. HEAT SENSE. FATIGUE & OPT …
SmilingHope’s Profile
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SmilingHope
is feeling Good
I M BLESSED!!
About Me
Recently married AND recently diagnosed w/ MS, both in '06. My husband is a BLESSING! (I thank God for him every day). We're coping w/ the many life changes MS is bringing. (I taught PreSchool all my life & now am unable to). Philosophy- Hope & Pray. I CAN & I WILL! Passion- complaining (j/k) I'd have to say Coffee-lol
Interests
Hi! I spoke about some of my interests but a few others would be...let's see... goofing off w/ my husband, Yoga, watching thunderstorms, eating out w/ my husband or friends/family members, Rehoboth beach (although NOT hanging in the sun), my Water Workout class...can't think of any more...
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Recent Activity
October 3
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SmilingHope changed their mood to Good 9:20pm
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SmilingHope changed their mood to OK 9:20pm
September 18
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SmilingHope turned 33 12:00am
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Journal
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Journal Entry for February 6, 2008
February 6, 2008 8:22pm
I HAVE HAD THE BEST DAY OF 2008 2DAY. I WENT 2 LUNCH W GREAT FRIENDS. BY THE WATERFRONT. GREAT SCENERY. THE WEATHER IS …
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Journal Entry for February 1, 2008
February 1, 2008 9:55pm
WOO-HOO!! MY EYES R CLEAR AND MY FINGERS R COOPERATING WITH THE KEYBOARD, WHICH IS VERY DIFFICULT MOST OF THE TIME. GOD IS GOOD! I …
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Journal Entry for January 30, 2008
January 30, 2008 10:51pm
HELLO. TODAY WAS A WONDERFUL DAY. SUNSHINE. COOL AIR. AAHHHH! TOMORROW IM TAKIN PARA TO THE HOSPITAL TO VISIT MY SIS, LIZ.
GOTTA GO. HOPE TO BE BACK …
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Journal Entry for January 18, 2008
January 18, 2008 2:46pm
I HAVE OPTIC NEURITIS AND ITS VERY HARD TO TYPE... SO, I HAVE BEEN GONE ...JUST CHECKIN IN! H9OPE ALL IS WELL.
TYSABRI IS WORKING, SLOWLY BUT …
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Hugbook
Kiss
hey you...haven't heard from you in awhile. Hope all is ok.. What ever happened to that bbq u were supposed to have lol j/k.....love ya b good talk soon.
Hug
Hug
am handing out, to you and you only, a special and heart felt hug...One of a kind...Only for one hug from you...you will get three, count them, three amazing hugs. If you are not satisfied you may return them at anytime...and if you hug within the next 30 minutes you will recieve 10 sweet thoughts absolutely free! Call 1800gettahug remember that number 1800gttahug...1800gettahug ...
Hug
I hope you have a cuddly warm weekend with this crazy, weird weather. But- remember, Spring is around the corner!
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Hug
Have a great day my friend!
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Photos
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Support Groups
Close Multiple Sclerosis (MS)
Type: Relapsing-remitting MSDiagnosed w/ MS 5/06 and my dominant symptom is weak legs(although I run the gambit of symptoms) Walk w/ cane or Rolator or use wheelchair. I have an AMAZING husband! Thank God for that! I'm not working. Try to exercise + stretch regularly. Use Copaxone. Rebif 1st but it made my symptoms worse.
Treatments
- Copaxone Too Soon to Tell
- Yea, it costs $1600 for this stuff. Pd for 1 month, skipped a month, now back on it. Insurance is a joke. Don't know if it's working yet. Need MRI.
- Rebif Not Working
- Made my symptoms worse, along with the wonderful side effect of flu-like symptoms and body aches.
- Solumedrol Working / Worked
- Currently use 1x per month. This time doesn't seem as effective as previous treatments so I'm worrying. I need to just stay positive. Easier said than done.
- Copaxone Too Soon to Tell
- started few mos. ago then stopped until I came up w/ $1200 or so. Now on it. Fine. Auto-inject. Minor reactions. Manageable. Hoping and praying it will take away my inflammation, which affects my legs and makes them weak. I have other symptoms, as well, but this one is my worst. Use Solumedrol, too
- Prozac Working / Worked
- Lemme just tell you! I cried EVERY STINKIN' DAY after being diagnosed. EVERY DAY. FOR WEEKS. I was COMPLETELY lost. My world was turned upside down! I had so many symptoms of this disease and just felt so overwhelmed all I could do was cry. I never thought I'd be on this medication, but I honestly recommend Prozac to anyone who sits home and cries on a daily basis. Find the joy in life! Don't let MS ruin every aspect. There ARE good things!
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Groups
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Snapshot
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