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  • Image of jaded622

    About Me

    I'm a SAHM to two wonderful kids. Zack 13(no CF) and Miss Jaden 3 w/CF.

    Interests

    I love Aerosmith, and reading Stephen King novels. I enjoy baking anything that is full of chocolate :). I love the summertime, the smell of the flowers and hanging out with Zack after the day has ended and looking at the stars.

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • Journal Entry for August 9, 2008

      Mood August 9, 2008 11:00pm

      Well we had to move my parents in with us. My mom can't pick him up so someone needs to be with her and with my kids I can't be in two places …

    • Journal Entry for July 27, 2008

      Mood July 27, 2008 9:49pm

      Things are really sucky here lately. We had to make a choice for my dad. We called Hospice in and it is the toughest thing ever to watch him slowly …

    • Journal Entry for July 8, 2008

      Mood July 8, 2008 10:49pm

      WOW what a great day!!!! Today is Jadens 4th birthday and we had a small party Sat for her but today we spent the whole day outside on this …

    • Journal Entry for June 30, 2008

      Mood June 30, 2008 11:19pm

      Been awhile but I have been a busy gal. Miss J had her surgery on the 25th and it went well. As the week went on she was running a temp and …

    • Journal Entry for June 17, 2008

      Mood June 17, 2008 9:52pm

      Kinda crappy day weather wise. I hate when we are stuck in the house. I cleaned good though :). Tomorrow I am taking my parents out to do some …

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  • Support Groups

    • Close Cystic Fibrosis

      I'm mom to Jaden who has CF. She is 2 1/2 years old. Jaden was dignosed at birth through the newborn screen test but both sweats test were negative. Our local peds said there was nothing wrong with her since she was growing and gaining weight fine. Deep down I wanted that to be true but I knew something was wrong. Her stools were not right and she begain to stop gaining. At 8 months I finally got another sweat test and it was postive. She has DeltaF508 and N1303K mutations.

      Treatments

      Prevacid Working / Worked
      ThAIRapy Vest Working / Worked
    • Close Non-hodgkin's Lymphoma
      Type: High Grade Non-Hodgkin\'s

      My dad was dignosed in o6 with NHL. It has been along haul as he was never sick before this. He is back in and not doing well. I need someone to talk to.

    • Open Parenting Preschoolers (3-5)

      I have a 3 year old daughter who has Cystic Fibrosis but she just like any typical little girl. She has so much energy it is crazy. She is going to preschool one day a week now but will be fulltime next year. This mama loves that one day,:)

      Treatments

      1-2-3 Magic Working / Worked
      I don't get past 2 and she moves.
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