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  • Image of phoenix516

    About Me

    My name is Renee, and I've got a lot of things going on in my life now. A year ago, I lost my son to Type I SMA after only having him in my life for 5 short months. Before Gavin came into my life, I wasn't a very anchored person. I was moving all over the country and having these whirlwinds of mis-adventures. After I got pregnant, I was ready to settle down into a career and a stable future, and I was well on my way to doing that, when he was diagnosed with the SMA and I lost him. Now, I'm struggling with my life and who I am, if not a mother. I'm constantly battling with depression, though most days I'm really good at fooling people into believing that I'm ok. Half the time, I can't tell if I'm moving forward or sliding back, but I'm still trying to stay grounded, rather than just picking up and running away again.

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • Journal Entry for November 13, 2007

      Mood November 13, 2007 1:41pm

      Two days off!  Woo-hoo!  Weekend, here I come!  Yeah, it's in the middle of the week, but I'm used to a screwy schedule.

    • Journal Entry for November 12, 2007

      Mood November 12, 2007 1:23pm

      I don't really want to go to work today.  Mondays are always busy, and I think we're going to be a person down on the night crew.  …

    • Journal Entry for November 12, 2007

      Mood November 12, 2007 1:45am

      Did Sunday papers with mom today, slept, and then worked the real job.  I hate that place.  My boss won't approve me changing my days …

    • Journal Entry for November 10, 2007

      Mood November 10, 2007 3:16am

      No call volume at work... AGAIN... or if there is, it wasn't really noticeable.  Bad numbers at work for the first time in a long …

    • Journal Entry for November 9, 2007

      Mood November 9, 2007 4:22am

      It's really late, and I should be getting rested for work tomorrow, but I wanted to write an update about my day because it actually turned out …

    Read Journal

  • Hugbook

    Give phoenix516 a hug

    • Hug

      From gramma2gavin May 5

      great big monday bear hugs for all today

    • Flower

      From compassionheart February 22

      Dear Phoenix, So sorry for your loss and so sorry for the decision you had to make for your precious boy! You are absoultely right, prolonging sufferings or torments are gestures of inflicting more pain in that person, your loved ones. How are you now? Your boy is in a better place now! Take care yourself! Compassion Heart

    • Hug

      From LeoDragon December 21, 2007

      Merry Christmas!

    • Flower

      From lidarose December 4, 2007

      You have faced the worst nightmare possible. You have touched my heart and will remain there. May God send you peace, Mary

    • Hug

      From Mommy2Gavin December 3, 2007

      just checking into to see how you have been. its been a long time! hope things are going as best as possible. xoxo jada

    Read Hugbook

  • Support Groups

    • Close Spinal Muscular Atrophy (SMA)

      My son Gavin was born 5-1-06. He started showing the beginning stages of SMA in 7-06, and was hospitalized because of it in 9-06. On 10-03-06, my buddha bear passed.

    • Close Bereavement
      Type: Loss of a Child

      My name is Renee and I became a mom for the 1st time on 5-1-06. On 10-3-06, I lost my son to SMA.

      Treatments

      Crying Somewhat Helpful
      I generally let myself build up over the days, then let the pain and stress overflow in tears. The seems to help a little bit.
      Grief Counseling Considering
      I really do believe that I need to seek a professional's care in dealing with this pain.
      Prayer Not Working
      I don't blame God for Gavin's death, but I have not been able to find peace in my faith.
    • Open Diets & Weight Maintenance

      Depression and pregnancy has caused me to gain between 60 and 70 pounds. I am now working to get back down to a healthier weight, in hopes that being healthier will help with my depression.

      Treatments

      Eating Healthier Foods Too Soon to Tell
      I have started to cut out processed carbohydrates, and started balancing my meals better. It's still soon to tell if it is going to help, but it has worked in the past.
      Eat Less Too Soon to Tell
      I have also started to eat smaller meals more frequently. Again, still too soon to tell, but it is something that was effective previously.
    • Open Epilepsy & Seizures

      Hi my name is Renee, and I was diagnosed with epilepsy when I was 14. My father has been a severe epileptic all of my life, so when I woke up with my tongue all bit up and feeling like a train hit me, I instantly knew what had happened, and didn't need to wait for the doctor to tell me. I'm 23 now, and I've had good and bad days, and I'm trying to avoid stress which seems to be my biggest trigger.

      Treatments

      Dilantin Working / Worked
      I'll admit that I'm stubborn about taking meds because I don't like the idea of liver damage; however, Dilantin worked really well for me, and it is one of the few they can give you thru IV if needed. Only side effect I had (as a woman) is that I grew a little bit of hair.
  • Friends

  • Snapshot

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