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Journal Entry for October 28, 2007 Mood
Sunday, October 28, 2007

                                          

 

 

                                                the long goodbye.

when i was approached by doug to put forward a non profit organistion,that i considered to be worthy of their donation,i thought long and hard.so many illnesses have touched my family over the years,heart disease,diabetes,arthritic conditions ,eating disorders,the list is endless,but eventually i decided on the altzeimers assosiation ,a worthy and genuine cause,so very close to my heart.

                                                                                         my late grandmother suffered from this debilitating condition,as does my father`s best friend.it`s called the long goodbye ,because unlike so many other illnesses,they are taken from you little by little ,day by day.It can creepup so slowly ,you hardly notice at first.maybe they will start to forget ,little things ,like what day it is ,where they`re going,or what theyare doing there.they become confused ,frightened ,child like.or they caan get aggressive ,wondering why ,and who is now doing what they once did for them selves. with my nan,she reverted to being a child,doing what ever you asked of her ,and following you around.she would take her cclothes off ,after you had painstakingly dressed her for the second/third,or fourth time.it was like a game to her ,but it took its toll om my mum.eventually ,she was advised by her doctor to find a residential home for my nan.this had to be the hardest thing she had to do.would anyone else take caare of her ,as we had done.?would they be patient when she undressed for the umpteeenth time?and would they bother to gently feed her ,when she would sit in front of her once favourite food?we were lucky,we found a home .close to my mum ,where they all adored the lady they called ,little Molly.

                                                          I,can remember like yesterday ,her last christmas with us.she came for the day ,along with my parents.my children were small then and didnt understand why she seemed much older,but acted like them.i,watched with a heavy heart as she was helped to open gifts ,she was bemused by ,and while i spoonfed her ,her once must at christmas,trifle,carfully making sure she didnt choke.I,knew then,this would be her last with us.when they had all gone home and the children were tucked up ,i cried for every part of her we had already lost ,andfor what surely was to come very soon.It wasnt long,she passed away just four short months later ,in her sleep ,with no pain.but ,although i cried ,i had already lost the nan i had loved so very much.

  so,now as i watch my father`s friend,a once proud man,a soldier in 2 world wars ,and a prisoner in japan for many years.alwaays a gentleman,neatly turned out ,and with a smile for everyone ,especialy the wife he adored .now,he too is ravaged by this disease,his wife due to heart problems no longer able to cope with caring for him 24 hours a day.A shadow of his former self ,he lives out his days being looked after by strangers,while his wife struggles to pay the exorbitant fees charged by these places.

 

                                             this is why i think this disease is worthy of the donation.it doesnt just affect those concerned ,emotionally ,but financialy aswell.the government wont subsidise ,or help ,they only take the lifetimes savings these proud men and women have struggled to keep ,hoping one day ,to help out their families once they aare gone.Is this right,that when they are at their most vunerable ,that they should be worrying about money,i dont think so. thank you for listening ,and if you think this cause is worthy of the donation that daily strength is offering ,please let doug know.thanks.sharon .(and to my special sis ter eleanor,i`m so proud to call you my friend,love sharon xxxxx ).

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Comments

  1. TBlazer

    My mother-in-law lived with us, she, also, had this. It is so sad to see these strong people that were so strong go to where they don't know who they are. It is so sad and also takes a lot-from the people that love them. The goverment could care less about the people. They take their money and give it to the people that is coming from other countries. They care less about the people in the United States that have been here all their lives...then have to live like they do.
    TBLAZER


    TBlazer

  2. dkay

    I'll let Doug know, although no one directly related to me has had altzeimers I have had people I know that have suffered through this heart wrenching disease. Thank you for this story, reminding me how it touches not only the one afflicted but everyone else around them. Love and Light!


    dkay

  3. pcoon

    It is so hard for the family and friends to watch them go through this.


    pcoon

  4. lesliew

    I'm so sorry that you had to watch your grandmother suffer with such an awful disease. How sad to spend the end of one's life not remembering those who you love so dearly. I haven't dealt with this disease with any family members, but I can't imagine how awful it must be. I think your choice is a wise one, and I'll send Doug a note in support for the Alzheimer's fund, too.


    lesliew

  5. mica

    So many proud wonderful people have this disease. Our neighbor had it bad and no family to help her out. She kept coming to our house and banging on the windows at all hours of the night. One time we found her in a field, another time under her house in the crawl space naked, then she took a midnight walk and ended up tangled up in a wire fence. It was awful and we could not watch her day and night. I finally had to call the authorities to get help for her. So sad- she would be mortified if she actually knew what all she was doing. My heart goes out to these proud people. Love, Cathy


    mica

  6. ladyglitter

    NO WONDER ITS CALLED THE LONG GOODBYE ITS A SAD SAD CONDITION IT STRIPS A HUMAN BEING OF THEIR DIGNITY AND IT MUST BE HEARTBREAKING FOR THEIR FAMILIES NONE OF US KNOW WHATS ROUND THE CORNER I WILL CERTAINLY LET DOUG KNOW THANK YOU FOR SHARING THIS WITH US YOURE SUCH A CARING PERSON AND IM PROUD TO HAVE YOU AS A FRIEND ..... XXXX


    ladyglitter

  7. rossiroo

    My grandfather died of this disease and it was horrible to watch as he ended up being fed like a baby with a bib xxx


    rossiroo

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