Journal Entry for August 24, 2007
August 24, 2007 10:56pm
I got my shots, and so I feel better. Just had an article published in Neurology Now my personal experience with Dystonia. I …
BJDean’s Profile
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About Me
I teach piano at home, despite the fact that I have Spasmodic Tortecollis. It took me from 1982-1995 to finally receive a diagnosis. I have a husband, a son who teaches High School, and a Daughter in CA with her husband, and my 2 grandchilden. I recently played my 3rd Concert for Dystnia Awareness, and hope to play another one durin the coming year.
Interests
My other interests writing- I recently wrote an article for the July/August issue of Neurology Now, and plan to write more. I also keep busy practicing playing piano at my church, and doing some original composing. For exercise, I like to go swimming, which my Neurologist approves of, and I must confess that I like to shop.
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Recent Activity
Sunday
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BJDean replied to calebsmummabn’s discussion post Will someone please help me? in the Dystonia support group 12:20am
Hi, Caleb, I hope that's your name. I too have spasmodic tortecollis, and I have also been divorced once.…
July 8
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BJDean gave aposey an I'm with you 1:08am
I think of you often. Bette…
July 5
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BJDean commented on aposey’s journal entry I made it to my homegroup last night!!! 8:17pm
Hi, Aposey, Are you seeing a Neurologist for your Dystonia? Are you receiving any Botox injections? If…
June 24
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BJDean replied to aposey’s request for advice about How can I get to sleep tonight? in the Dystonia support group 1:09am
I personally take Halcion for sleep, and it seems to work fine. You also might try reading a Psalm or…
May 17
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BJDean turned 71 12:00am
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Journal
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Hugbook
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Hug
Thank u much...hope ur doing alright today...please keep in touch...God Bless...
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I’m With You
I think of you often, too, & am very grateful to have you as a friend!
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Hug
Thank you for your continued friendship & support; your friendship means SO much to me! Thank you for being there, and I appreciate your "advice"/ sending me websites I can go to for help with my dystonia. You are a real go-getter, & I feel honoured to know someone like you, who is so active, & can pursue your interests. xx, Alexis
Flower
Thanks for raising money for dystonia especially since I love a piano. I also have ST and write, but allow myself typos when sending messages to friends. You are very level-headed in dealing with others. I recently learned not to give advice, but support is good!
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Flower
Looks like we have a similar history. I'm not musical, unfortunately. I'm a photography fanatic? Have you checked out the dystonia groups I posted. Could help your ADMIRABLE efforts to make people aware of dystonia/ST.
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Photos
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Support Groups
Close Dystonia
I am seeking to raise awareness of Dystonia and ST, by playing piano Recitals, and other ways.
Treatments
- Botulin Toxin Working / Worked
- I also take 5 other kinds of medications. I see a Neurologist in Scottsdale, AZ regularly.
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Friends
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Snapshot
Recently …
- 1 hug received
- 1 discussion reply
