Journal Entry for August 15, 2007
August 15, 2007 9:14pm
Well I'm not as depressed and i have some hope returning which is a good sign. as far as my problems go well there still there but at least now i …
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lorial’s Profile
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lorial
is feeling OK
About Me
I have fibromyalgia, a rare liver disorder, raynauds and a host of other health problems. I love animals and gardening.
Interests
I've learned to appreciate the small things in life like a bird sing or a rainbow...those things i dont take for granted anymore. animals are my life without them my life would be so empty. I love cats but have just discovered the world of birds...cockateils etc. there awesome..and i soooo have learned to appreciate the good fibro days...dont know how long it will last or if i will get more of them. In fact at any time i can take a turn for the worse and end up on the transplant list...one never knows so i have to enjoy what time and what kind of life i have left.
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Recent Activity
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Journal
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Journal Entry for July 24, 2007
July 24, 2007 2:18pm
i find it so hard to go on with this life filled with stress and pain. why do we have to suffer so and others have all the good things in life? my …
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Journal Entry for March 17, 2007
March 17, 2007 8:59pm
Today for the first time in sayyy 10 yrs i have hope for my life to take a turn for the best...have always wanted peace and serenity in my life but …
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Journal Entry for March 14, 2007
March 14, 2007 5:51am
Today i have to go pick up my scripts at the pain clinic....if i dont have the copay to be seen i cant get them..last time they would not give them …
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Journal Entry for January 26, 2007
January 26, 2007 2:08pm
Oh i am so sick of being sick and tired all the time. I wish i could work and earn money...its such a lousy feeling collectin disability and relyin …
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Hugbook
Hug
hugs and love and hope all is well
Hug
Hi Lorial! I haven't visited this site in a while.Hope you are feeling well today. My best years were the first 14 since liver transplant in 1993; news of needing one is not so bad if it ever happens. Now my autoimmune condition appears to be attacking this liver. It has never really been named. I see the liver specialist Monday and probably have another biopsy due - he sort of warned me to expect it. Had a bout of food poisoning this week. That'll clean you out! Take care.
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Hug
just seeing how you are doing and sending some love and hugs
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Hug
just sending love and hugs your way and hoping for a good day
Hug
Thanks for hug and I am so sorry for what you are going thru.....as for me, I am dealing with sooo much too, besides the Fibro, and all the ills &issues - my new Neuro doesn't think seizures are epilepsy, so going in hosp. for 4 days to 2 weeks for tests.....then another apt. spread bed bugs to me (and it's a beautiful apt. building), so have move downstairs to smaller apt.- throw out lots, no money for new, clean & bag everything, throw away alot of my life.....no help....MAJOR job to do all this, plus psychological factors - Unbelievable - plus going in hosp, on July 15th & have to get all this done before that.....move in next month or so........yikes,.....I'l pray for you, and I would appreciate prayers too..thanks, hope you are better today xoxoxox
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Photos
lorial hasn’t uploaded any photos yet
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Support Groups
Close Fibromyalgia
lorial hasn’t entered any details for this support group.Close Hepatitis C
hi i have hepc and i also have a autoimmune liver disease called pbc..primary bilary cirrohis. becuz of that i can't do the treatment..it would kill me. I also have fibromyalgia and raynauds and oh arthrtis.
Open Chronic Pain
Hi I have fibro, hep c, a rare autoimmune liver disease called pbc, arthritis, scolisosi, raynauds and possibly lupus..i am in pain 24/7 but finally have come to realize that i have to accept being like this...depression doesnt help matters more it just makes me hurt more than usual so i try to stay upbeat...not a easy task...lol
Treatments
Open Lupus
well i have other illnesses regarding the liver so plaquenil would be risky for me to take..I'm still thinking about whether or not i should risk it.I have alot of lupus symptoms and i know it would make me feel so much better but i just dont want to have weekly bloodwork done rite now...i'm, sure i will change my mind if my symptoms get worse.
Open Smoking Addiction & Recovery
well i am addicted to cigerettes along with havin hep,pbc,fibro,raynauds, lupus, arthrits and so on and so on. i should not be smoking as i have high blood pressure also.
Treatments
- Chantix Somewhat Helpful
- chantix really works. when u look at acigerette and lite up its lilke yuck but it tore my stomach up..couldnt continue to take it..needless to say i am still smoking.
- Cold Turkey Not Working
- Commit Lozenge Considering
- Hypnotherapy Considering
- Laughter Not Working
- Nicotine Gum Working / Worked
- Wellbutrin Not Working
- i couldnt take the wellbutrin...it made me hyper and i felt really crazy.
Open Interstitial Cystitis (IC)
I'm still not sure i have IC but a few yrs ago before i got diagnosed with fibro i had horrible pelvic pain and sometimes i had pressure on my bladder. I went to a bunch of drs and no one could diagnose me. I even had a lapropscopy. I had to take percocets to be able to go to work and i noticed that stress made it worse. I still get pelvic pain but not as severe. I bet that i have Ic!
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Snapshot
lorial hasn’t been active on the site in a while. Why not give lorial a hug?
