My oncologist called me yesterday. I hadn't actually expected the call at my work phone but that's the number he had. Not really the point, though. He relayed that the plan for the moment since other than severe fatigue I'm not really showing any external symptoms of Hodgkin's is to wait and gather more information from his contacts around the country.
In other words the board of specialists didn't have anything to offer.
We've made an appointment to see him again in about 4 weeks for a check-in. Will probably do another PET scan at about that time to see if the intervening 6+ weeks showed any change (positive or negative). I'm not holding my breath anymore.
Something he did that was really cool was refer my case to a social worker at the hospital he's at. She was a very nice lady though we only spoke briefly because she caught me as I was driving in to work. It's a small thing to do but it shows that he cares and is probably as disappointed as I am that things haven't worked out yet.
I've often wondered how oncologists stay in the field for very long. It's inevitable that one of your patients will die from cancer in spite of your best efforts and that knowledge would be a heavy burden to carry.
your going to get better i pray for you every night your beliefs and strength will see you through i sent you a message about the tattoo did you get it love kalei
kalei
I have been thinking about you so much lately. I was actually at my chiropractor's office the other day and came across an article about a doctor in NY that has helped and even cured many terminal people with cancer by evaluating their body chemistry and giving them a very specific diet based on their bodies make up. I have been looking into changes like these for myself. I have started buying mostly organic food and personal products. After reading all the chemicals in these products I have found that I no longer feel comfortable putting these products on my skin or in my mouth. As always, I am here for you but I also totally understand you not wanting to talk about it.
Love and many Hugs,
Jeannine
Jeannine