Journal Entry for June 18, 2008
June 18, 2008 6:07pm
Well winter is her to stay now. It's bloody cold today.
This past week hasn't been to good. I am positive my hips are out, so they are really …
vampirette’s Profile
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vampirette
is feeling Horrible
About Me
I love music, weither its listening to it or playing it, without it I think I would be lost.I did 2 years at uni a few yrs ago studying arcaeology and biological anthropology and wanted to also get into fossils, but had to quit. but it doesnt stop me from reading up on it. Cant go out dancing anymore with the girls so we stay in and have drinks nights while playing board and card games, or my man plays them with me(we love spongebob uno and spongebob game of life).yeah it might sound silly but its so much fun!!!Iv just gotten back into cross-stitch and am making my own cards to hopefully sell one day. One thing I find hard is trying to explain to people what fibromyalgia actually is. And at times I feel like people look at me and go 'She looks fine, she's probably just lazy and doesn't want to work. It can be very degrading and frustrating.
Interests
love readin terry pratchett and anne rice books. playing my guitars(classic and electric), flute, piano. I love fossils, i have a few and have also found a few at a beach near where i live!!!
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Journal
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Journal Entry for June 8, 2008
June 8, 2008 10:59pm
Hips are SOOOOOO sore today :( But it's nice to have a cat sleeping on my lap. The litte boy is sooo much bigger than when we 1st got him. …
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Journal Entry for May 14, 2008
May 14, 2008 6:23pm
Well the weather is definately colder. Got snow on the mountain. Boy, my body really doesn't like the colder months. Keep waking up in lots of …
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30/04/08
April 29, 2008 9:08pm
Well we have had our Gary for a week now. I really can't believe how well he has settled in. It can be very tiring looking after him tho. …
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18-4-08
April 17, 2008 4:43pm
WOW!!! Today I woke up in complete agony in my hips and lower back. It hurts to lay, sit, stand, walk. It is soooo frustrating when it gets to this …
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Hugbook
Hug
I hear ya! its ok up the mountain on a sunny winters day tho, but even then theres good days & bad up there
Hug
Awwh sorry to hear it hun (((( )))) mmmm yeh eat those hot pies and hide from the cold. :Þ (((((( )))))))
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How u doin? :) Hope u takin good care of yorself, hows lil gary? Bet he got big quick yeh? (((((((( )))))))))
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yea, damn nice day today.....bit chilly tho aye. Ya see the news about the cold snap down south? cars slippin all ova da place, bugga dat! thank God it dont get like that here aye! =D
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Hows chilly south Naki??? damn cold at the mo I bet.....more of it comin ur way 2. Im in New Plymouth =D
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Photos
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Support Groups
Close Fibromyalgia
I was born with hypermobility in my ligaments, so couldn't walk on my own till I was 18 months old with the aid of special boots, then the problem went to my knees when I was about 10, now its in my hips so I get cronic pain mostly in my hips, and in 2004 I also found out I had fibromyalgia, but only because my mum had been diagnosed a few years before that. So I can't work. But I have a partner and friends who are very supportive about it all, so I guess i'm lucky in that aspect.
Close Tooth Grinding
Aparently I grind my teeth in my sleep alot. I have had sensitive teeth for quite some time and i'm am guessing that it is caused by my teeth grinding.
Open Migraine Headaches
I started getting migraine headaches in 2005. I just hope they never get as bad as my mothers ones, where she had to be taken to the hospital for an injection. I would rather deal with my hip pain, than migraines.
Open Insomnia
I use to get insomnia so bad that I would go nights without sleeping at all.
Open Chronic Fatigue Syndrome
CFS comes hand in hand with my fibromyalgia. Sometimes I feel so drained and don't even want to leave the house
Open Dyslexia
never knew I had this till after high school. Don't know how they didn't know considering I would sometimes put letters backwards without knowin I was doing it.
Open Hypermobile Syndrome
I have had problems with this since birth. Now it has a major effect on my life,with constant pain problems.Couldn't walk till 19months old with the aid of specially made boots. Then when at 11 my knees were greatly affected, no I also have major pain in the hips.
Open Restless Legs Syndrome
I have had this for many yrs without knowing what it was. It can be very frustrating when my partner is trying to get to sleep and I suddenly get it. I useually go to a different room until I have it under control. I have found that if I just get back into doing my exercises for my hypermobility or if I eat one of the biscuits I make late at night , these things can trigger them.
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