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  • Image of kakalover0220

    About Me

    I have 2 brain tumors-Cavernous Angiomas-both in different locations in the brain; seizures; constant headaches; etc...... I just recently moved to the great state of MI. So, hopefully things will go well there!

    Interests

    European Soccer (esp. A.C. Milan); :); reading; writing; the computer; geneology; and of course, my son. I also like to sew, scrapbook, & with certain friends --I pretty much have my very own "coffee house"!!! In case you didn't notice from my site-I love Riccardo Kaka' (AC Milan's star player!)!!! :)

  • Recent Activity

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  • Journal

    • Back .......

      Mood July 10, 2008 2:25am

      Hello there everyone.  Just a quick entry.  Just wanted to let you all know I'm thinking of you, praying for all of you daily.  …

    • Working on it.....

      Mood May 24, 2008 5:00am

      Working on it....... Getting things......working on getting the Live Strong notebooks done, and called hospitals to get them donated.   BUT …

    • WOW, it's finally over!!!!!!!!! :)

      Mood May 24, 2008 4:50am

      Thank heavens......As of last night, it was finally over.  WE gave out my Mother's Memorial Scholarship last night at the High School …
    • This entry is private

    • Thanks LUV BUGS!!!!!!!! :)

      Mood May 15, 2008 3:53am

      Hello there my dearest LUV BUGS, I thank all of you for hanging in there and sticking by me---and especially those of you who have NOT cared …

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  • Hugbook

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    • Hug

      From Love4you Yesterday

      I hope you woke up this morning with a big smile on your face I hope the sun is shining just for you and the birds are singing their very best songs... I hope your coffee is hot and tastes just right and the cats are purring contentedly, and the mailman waves a cheery hello and there are no bills in the mailbox... I hope just everything goes your way ... I hope everything is well with your world, a place for everything and everything in it's place... I hope you can enjoy all you do and you are complimented on the way you look and you can laugh and talk and share to your heart's content I hope you have all you wish for yourself and those dear to you, and all your dreams come true... At the end of the day I wish you a perfect moon shining just for you, a snug and cozy bed with the softest of pillows and I hope you sleep like a lamb with a smile on your face... I hope you have a perfect end to the perfect day and I hope that every day is just as wonderful in it's own way I hope your day is ... filled with love!~Love,Maria

    • Hug

      From SST Wednesday

      It's not what you gather, but what you scatter that tells what kind of life you have lived.great big ole grizzly bear hugggzzzzzzz squishhhhhhhhhhhhhhhhhhh

    • Hug

      From textragickingdom Wednesday

      i've been having lots of migraines in the last few weeks...mostly one continuous one :( hurts now. warm fuzzies 2 u :)

    • Prayer

      From Love4you Saturday

      It's easy to forget your hopes for tomorrow when your heart is heavy with pain and sorrow. But even when life is at it's worst, there's a spark of hope inside that grows brighter each day, until it shines through the darkness that has traveled your way. Have faith that things will get better.Love and Hugs,Maria

    • Hug

      From Love4you July 18

      You can love another deeply and completely; you can be happy and find contentment in every day life; you can succeed no matter how big your dream; you can find the strength to make it through; you can hope even when all seems hopeless; you can give and be all the happier for it. You can do all these things and so much more... but only if you love yourself! Love~Maria

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  • Goals

    Progress

    10 %

    Goal End Date is Oct 21, 08 88 more days.
  • Support Groups

    • Close Brain / CNS Tumors
      Type: Other

      I have 2 cavernous angiomas w/ seizures & nearly constant headaches. I am in pain all the time & need support since I don't get it at home! Both of my tumors are inoperable & bleed causing damage & disablity, not to mention memory loss. It is NOT fun.

    • Close Migraine Headaches

      I have ALWAYS had severe headaches...but about 10yrs. ago, I was diagnosed with a brain tumor. Recently, they found another one as well.

      Treatments

      Yoga Working / Worked
    • Open Epilepsy & Seizures

      Was diagnosed 10 yrs ago, & have seizures every day. Mainly temporal lobe; or "partial"... seizures, but at night I have grand mal seizures. It's no fun, & unfortunately for me NO one understands my moods or anything after the fact.

      Treatments

      Tegretol Somewhat Helpful
      Take them during the day...they somewhat work. But it seems NOTHING really gets rid of all of them.
      Topamax Somewhat Helpful
      I take these at night for grand mal seizures. They generally work but not for all of them.
    • Open Back Pain

      I've known for about 2yrs. but just found out I probably have some scarey things wrong with my lower back & cervical (cervical). I have fluid collection in both-could mean any # of things & am waiting for more MRI's & MRA's to know more.

      Treatments

      Heat Working / Worked
    • Open Pet Bereavement

      I am a true dog lover-particully ChowChow's! Ihave now owned them for over 17 years. My 1st one was my dearest baby,best friend, protector,seizure detector,& my son's protector when he was born. He was with me thru every single major event in my life. I sincerly believe that the only reason he lived as long as he did (over 13yrs), is b/c of me. I was with him when he died, & suffered the aggony of it all, & I mourned for days (even much more raw feelings than when my mom took her life!)!

    • Open Stress Management

      I have 2 CCMS--a type of brain tumor---which bleeds, causes seizures, memory loss, severe headaches...etc... anyway, I CANNOT-or should NOT have any stress....but really??? that's all I seem to have lately!

      Treatments

      Yoga Working / Worked
      This does really work...and helps with the balance, & breathing!
    • Open Carpal Tunnel Syndrome

      I was diagnosed with this after being tested b/c I have 2 brain tumors, possibly 4 in my back. My arms randomly loose feeling, I drop things, or as I say-dead hands-and they completely go numb when I sleep. I hate this. This also is in my feet. The worst part of this is b/c I can't feel my hands I have reached into my oven & grabbed a hot pan, or put my hands under HOT water, & can't tell sometimes if I hurt it. Plus I have a bleeding disorder; which makes it worse.

      Treatments

      Wrist Splint Somewhat Helpful
      DOES work occasionally..... if an injury occures.
    • Open Bereavement

      I have lost both sets of my Great-Grandparents; my Great-Aunts (3 of them); my Mother to suicide; my Uncle; and just recently my Grandpa (who is also my Godfather)---all this is very, very hard for me. It seems I USED to be the HEAD matriarch of the family, but due to the recent losses, and deteriorating condidition in my poor bleeding brain....I am NO longer so. NOW, MY family feeds on my weaknesses, and often uses it to their advantages.

      Treatments

      Crying Somewhat Helpful
      Helping Others Working / Worked
      Starting a foundation in memorial of my uncle & Grandpa
      Keeping Busy Too Soon to Tell
      Pets Working / Worked
      DO NOT KNOW WHAT I would dow with out my dog.
      Prayer Working / Worked
      Time Too Soon to Tell
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