Journal Entry for May 16, 2007
Hello, I just got my test back, I have cadasil. I had my first TIA at 29 a week after the birth of my last son. In the last year I have had at …

is feeling OK
I am married have 3 kids. One girl and 2 boys. I just found out that I have cadasil.
Hello, I just got my test back, I have cadasil. I had my first TIA at 29 a week after the birth of my last son. In the last year I have had at …
Thank you for the hug and flowers. I just haven't had a last two good years. After having my last baby I had post partum depression really bad. Had to be on meds for over a year. That messed my gums up and had to have gum surgery for that. On top of that they say that meds have side affects and they sure don't lie. My ears are always ringing. It drives me crazy. I hope this goes away someday and I am not stuck with that. Then my dad has strokes and eventually we find out what it's from. It is hard for me to see him this way. He can't even function like a normal person anymore. He doesn't even talk. He has such a hard time with his speech that he gets frustrated and then other times he looks at you like he doesn't understand what you are saying. We still have him at the hospital and are trying to get him placed in a nursing home because no one can take care of him anymore do to all of his symptoms. Information about this hereditary disease was helpful but depressing because there is no hope or cure at this time. How do you deal with this? Do you suffer from the strokes that you have had? Are there meds they have given you to slow the disease down? I think my dad's has progressed so far that no amount of meds are going to help him at this time.
Thank You. I did see the website. Depressed me.
I like you have two boys and 1 girl. My father had stroke 2 years ago and he is getting worse. He is now 60. We recently found out he has CADASIL. I was also told that I and my children may have it. I am almost 34 and this really shocked and scared me. I don't think I will be tested because I am a worrywart and it would bother me more if I knew I had it. My father has most all conditions and symptoms of this disease (mood swings, short temper,loss or memory,slurring,disturbed hallucinations and so on. This disease is really scary!!!!! I am sorry for what you have endured. My mother has been taking care of my dad and I help as much as I can but it is hard because I work, kids,etc. My father is at this stage getting too hard to take care of and their insurance won't take him. She had to resend him back to the hospital again because he is always violent towards her. Not SAFE to be in her care. I really hope they can do something for him. I have been trying for over six months to get someone to help us and am getting no where. FRUSTRATING. Makes me think that I need to look into long term care insurance for myself. Why can't they find cures for all diseases? It's SAD.
thinking of you
hi welcome to ds. I have tried prozac and it made me worse.
Cadasil runs in my family. My grandfather, my mother has it and I just found out a couple of months ago I have it. I am 38 and have had 4 tia's already. The first being at age 29. I have had 3 tia's in the last 6 months. My balance has been affected somewhat but other then that I have recovered well. Just want to find someone that I can relate to.
I have struggled with depression most of my life but at its worst I felt nothing. Even feeling bad would have been better then nothing. The doctor put me on Paxil and I was feeling better the next day. I have never felt that bad since even with all the things that I have going on. I do need to find a support system. To deal with all the life problems I have.