Only 26 days until I get to visit …
Only 26 days until I get to visit my hubby! YEA!!
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Good morning to all ! Our lives are ever changing !! Last Friday, May 9th , was the 1 year anniversary of losing our home. Does not seem like a year but it was life changing in lots of ways. We have moved back to Texas to be near our kids and left all of our friends behind. We miss them and right now we only interact with our son and his family. We are planning to visit with the PD group here next month. My hubby needs to talk to other people that have PD. The only thing he knows about his problem is what I have read, talked to other people on DS, or researched. He takes no initiative to find out anything. Sometimes it is hard not to be a little disappointed and angry. This is defining our life right now and I seem to be the only one involved in some kind of answer. Sorry about that statement I guess I just needed to put it in writing to admit how I feel.
On happier note Mother's Day brunch with the kids was great. I got a card from our son telling me how glad he is that we live closer. That is the bright side of our move. Our oldest grandson called and he will be down this weekend.
We continue to " tweak" the PD meds. Some days are pretty good others are not so good. On the last visit to the neurologist she talked about the DBS procedure. After much thought and discussion we have decided not to go that route. Many things contributed to that decision. Not the least is the cost. Other reasons were the feedback and possible results from this very invasive procedure. We may regret it later but my hubby made the final decision.
Wishing everyone a great week. A BIG thank you to all friends that have keep the hugs and flowers coming. I really appreciate this support group. Blessings to you all !!
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Glad your Mother's Day was wonderful! What happened that you lost your home if I may ask? I hope you and your hubby have a wonderful day! ((hugs))marcia
bizemomm
Glad to hear from you again. Do you have a home with a yard. I know you enjoyed the last one. I understand how you feel about having initiative. I must do everything. However, at this point Mike can't handle much. It's strange how things happen, the other night Mike was up and down all night. Now today he was doing well enough to go to the dinner theater. Thank God. He is beginning to get real disgusted. I understand th DBS procedure works better on younger people. Hang in there.
Benie
My heart goes out to you. My husband was the same. When he was younger and healthier, he was more inclined to express interest in his health problems. In later years, gathering info, etc. fell into my lap. I, too, felt great frustration - as you do.
May I suggest to you that you find a way to learn to accept the idea that he really may not be able to reach out by himself. He may very well be doing the best he can.
It is only now that I have come to realize and understand that dealing with Parkinson's and/or pain is so wearing (physically, mentally, and emotionally) that getting thru each day is all the person can do. Sadly, I see now, when it is too late for us, that my expectations of what my husband could contribute to his well-being were too high.
I deeply regret that, yet I am not heaping guilt on my head since I was also overwhelmed by our situation. My thinking was not clear; I was pushed to my limits physically and emotionally. Under the circumstances, he and I did the best we could.
Another problem we faced was that we had been very isolated for many years - although I didn't realize that when his health was better. Had I only seen it, I could have taken steps to give us an edge. I believe you are aware that the support system (of friends) we thought we had turned out to be a very poor one (and that is putting it mildly). Sadly, during his last years, I was unable to get the support we needed. It was a case of needing support so that I could find the time and energy to GET real support.
I find it heartening that you and your husband are able to reach out for support and that you will be meeting with the PD group. Hopefully, you will be able to rebuild a new circle of friends from ppl in that group, while keep in touch with your friends from your old neighborhood. You, also, seem to be bit isolated - although I am sure your family does the best they can, it helps to have friends at hand. And while you are at it - go easy on yourself, too.
My best to you.
Len
LostLadyLen
I guess that may be a man thing not taking interest in finding or looking up info. but George did like it when I would share info I looked up for him. I go to a caregiver group it is helpfull.
Addymay