What I hate about Lupus
May 7, 2008 7:59am
The Lupus road is too bumpy.....so up and down, just like my feelings.
Some days I wake up and it's like someone (just for a joke) took away …
Progress
55 %
ozangel’s Profile
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ozangel
is feeling Bad
About Me
46 with 2 daughters 22 & 20. Symptoms for ?5 years, may have had past short episodes with long remission. Commenced nursing 5 years ago and weird things really started - stress of shift work, especially night duty, makes me sicker. Anyone else find this? Moved to the sunniest state in Australia, that seemed like a good idea 20 years ago, my love is nature and all the outdoor pursuits.
Interests
Bushwalking/camping, Kayaking, Fishing, Reading, Nursing, family and now got back into my painting, it helps to do something creative.
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Journal
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Achey Breaky Heart
March 4, 2008 7:23pm
I am hurting, burning and aching all over - headache, lymph glads sore, muscles cramping - uuurrrrgghh. Been back at work for a month now, …
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Journal Entry for January 31, 2008
January 31, 2008 5:57pm
It's been a while since I posted - been panicking silently about starting work again, 4th Feb, in my permanent job. Have been doing 2 casual …
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Journal Entry for November 9, 2007
November 9, 2007 2:45am
I must be a selfish bitter cow. I've been depressed the last 2 weeks coz my rheumy told me it was crunch time and I had to decide whether to …
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Journal Entry for November 1, 2007
November 1, 2007 7:24pm
I am hurting so much, my body is on fire and my brain is full of water - how's that for a conflict?
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Hugbook
Hug
REEEEAALLY BIG HUGS FOR YOU........These are bcuz I am waaaaaaay overdue keeping in touch with my DS friends!!!!!!!
I’m With You
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I’m With You
You should have your doc test you for uric acid. It sound just like mine feet and hands. I have gout in my hands and feet. I cannot bend my middle finger on my left hand. I try to do a lot of handwork crochet, embroidery, knitting, etc to help keep as much flexibility as possible. Good luck. I hope it is not gout but just the lupus messing with your feet and hands for a bit and will soon go away. My thoughts and prayers are with you,georgiah
Hug
May your feet be pain free and your week filled with good things....love, light and peace from Perth...
Hug
More gentle hugs to you. I hope you are getting the right treatment and start to feel better soon. I'm keeping you on my heart and in my mind. peace and love ... Kyle Anne
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Support Groups
Close Lupus
45yo Cardiac Intensive Care Nurse with symptoms for a few years before being diagnosed (officially) on 31/5/07 Symptoms: Photosensitivity,Reynaud's Phenomenen, Fevers, Fatigue, Headaches, Arthralgias and Myalgias, Gastrointestinal probs like IBD but notIBD, ?depression.
Treatments
- Plaquenil Not Working
- If it was working how come I still have bad flares?
Close Food Allergies
Type of allergy: PeanutsInvestigating Lupus related abdo pain, my gastroenterologist now has told me I have Fructose Malabsorption and Lactase deficiency. When you look these topics up though you find that 30-50% of the population has a sugar intolerance. It's noted as a leading cause of depression.
Treatments
- Avoid Certain Foods / Chemicals Working / Worked
- You do feel better when you have a few days without food triggers. I've had no caffeine, milk, wheat for 2 weeks now and it's incredible. My aches and pains have gone.
- EpiPen Working / Worked
- Only needed when I ingest peanuts and then is a lifesaver. Adrenaline makes you feel weird.
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Groups
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Snapshot
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