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Until recently I've never been compelled to seek out others who share my condition. In fact, I did everything in my power to avoid being categorized as anything less than "normal." I've spent almost half my life TBI survivor. For the most part I have been considerably fortunate. Not much has been upset by my flight down the stairs. I dealt with a few years of emotional problems coming out of high school which I guess I grew out of. In 2003 I had my first seizure. 10 years after the accident. As it was happening I knew instantly what it was. Some people see flashes, have blurred vision, taste and smell non existent odors. In my case, I hear it coming. It sounds like humming then pulsating in my left ear. One of two things happens at this point. It either fades completely within 10 - 15 seconds or it grows in severity till I lose balance and speech capability. It then becomes a gran mal. I have roughly 15 seconds to figure out what to do and request assistance which is more than most people get. When I have the small ones I can conduct myself regularly the entire time hoping the all the while it doesn't progress into a full blown seizure. The big ones have happened twice in the past 4 years. The little ones, slight humming noise in my ear, happen 1 or 2 times a month. They have actually lessened in occurance since my first one but still make themselves known. I guess I want to know if there's anyone who goes through this the same way.
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Comments

  1. maharm

    Wow, by the sounds your are very lucky that the concequences(sp) of your fall are not worse. I have a cousin that had a very high fever when she was very little and it impared her very badly. She also knows when her seizures are comming. She is 22 now and the drs said she wouldn't live past 5. she never mentaly developed past the age of 8. she has had every surgery there is and nothing is helping. She is getting worse. I don't know how she knows but she will tell her mother or care giver and they have to apply a magnet to some implant in her chest that shocks her brain out of the seizure, sometimes. I know her situation is much worse than yours but I wanted to tell you about it. I would also like to welcome you to DS. This is a great community with tons of support and understanding from great people. I hope you enjoy it as much as I do and thank you so much for your coments. You are right, I have to kick myself in the tush and just do it for myself and my kids. They are not over weight now and I make them eat very healthy hopping that they will not have to deal with the problems that come with obesity. I hope we can talk again soon. Your Friend Meghan


    maharm

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