Finally done with tests!
I just got back from the hospital..I've had 2 solid days of testing to detemine my stage. Bone marrow biopsy, …
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Today is May 14
My son was diagnosed with MPS type1 like two weeks ago he is a year old and to look at him you would not ever think he was sick we didnt but then on 4/24 we went into scotish rite hospital for an abses he had on his neck the doctors started doing all types of test they did x-rays a MRI two blood tests a urine test a heart echo I took him Thursday for an abdominal ultra sound they did an eye test and all the test came back positive for Mucopolysaccharidosis so anyway he is very active and playful and full of happiness. We have also been taking him to church also
My son was diagnosed with MPS type1 like two weeks ago he is a year old and to look at him you would not ever think he was sick we didnt but then on 4/24 we went into scotish rite hospital for an abses he had on his neck the doctors started doing all types of test they did x-rays a MRI two blood tests a urine test a heart echo I took him Thursday for an abdominal ultra sound they did an eye test and all the test came back positive for Mucopolysaccharidosis so anyway he is very active and playful and full of happiness. We have also been taking him to church also
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