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Today is May 15,2007
Christian seems to be feeling great today but it is still a little to early to tell but anyway I am waiting on Saturday to get here so we can go ahead and get him on the list for his bone marrow transplant so i will write in my journal then
Christian seems to be feeling great today but it is still a little to early to tell but anyway I am waiting on Saturday to get here so we can go ahead and get him on the list for his bone marrow transplant so i will write in my journal then
Today is May 14
My son was diagnosed with MPS type1 like two weeks ago he is a year old and to look at him you would not ever think he was sick we didnt but then on 4/24 we went into scotish rite hospital for an abses he had on his neck the doctors started doing all types of test they did x-rays a MRI two blood tests a urine test a heart echo I took him Thursday for an abdominal ultra sound they did an eye test and all the test came back positive for Mucopolysaccharidosis so anyway he is very active and playful and full of happiness. We have also been taking him to church also
My son was diagnosed with MPS type1 like two weeks ago he is a year old and to look at him you would not ever think he was sick we didnt but then on 4/24 we went into scotish rite hospital for an abses he had on his neck the doctors started doing all types of test they did x-rays a MRI two blood tests a urine test a heart echo I took him Thursday for an abdominal ultra sound they did an eye test and all the test came back positive for Mucopolysaccharidosis so anyway he is very active and playful and full of happiness. We have also been taking him to church also
