Journal Entry for May 15, 2007
May 15, 2007 8:42am
Today is May 15,2007 Christian seems to be feeling great today but it is still a little to early to tell but anyway I am waiting on Saturday to get …
hhenry85’s Profile
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hhenry85
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About Me
My son has mps type 1 he is a year old and he was just recently diganosed we dont know what subtype he has yet but we have to take him saturday for blood tests to try and find him a match for his bone marrow transplant we need support and help with this this is my first and only child and I have never had to deal with anything like this before
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Journal Entry for May 14, 2007
May 14, 2007 3:54pm
Today is May 14 My son was diagnosed with MPS type1 like two weeks ago he is a year old and to look at him you would not ever think he was sick we …
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Close Mucopolysaccharidosis
My son is the one that has mps type 1 the doctors dont know if it hurler yet or not but they say according to my son's MRI that is very likely that he could have hurlers but they say that is to young to tell right now he is only a year old his dad and I have decided to do the bone marrow transplant so saturday we are taking him to get blood tests done to try and find him a match
Treatments
- Bone Marrow Transplant Working / Worked
- HARD
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