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Journal Entry for August 28, 2007 Mood
Tuesday, August 28, 2007

Tongue outwella, wella, wella....and how are my communal friends this morning?? How does one fel about the depression that lurks with this disease, and how unpredictable it can be...Huh????  After 20 years of this, my body is starting to realize that I "can't"..and just that thought of "can't" is driving me nuts.  I have lost alot to MS..I am in a wheelchair, and I can't play my blessed piano, but so many wonderful things have happened to me over these last 20 years.  My daughter may be pregnant, and albeit I know, from experience, itis more painful to abort a baby than having one...emotionally pay a huge toll...I also know that my  grandma flag is flying high, and if she decides to not have it right now, which is her right, I may be losing another grandchild.  my oldest made a choice a few years ago..same ending.  Being adopted and not looking like anyone, it has been hard to see my face.  I have been told I am attractive...sobeit....but who do I look like?? My kids turned out to resemble their fathers...( 2 marriages), so I am being selfish in wanting to see a little bit of me before this damn disease leaves me existing, instead of living.  I hope I would be strong enough to hold a child, but I tried with a friends, and I cannot.  Grieves me terribly.  But, ya know??  But.....as Buddha says..."In one's family, respect and listening are the source of harmony".  So shut up, Lee..quit whining and realize that enough is more.  

Otherwise, all seems well.  It's gonna be a couple of "in" days, as it is going to be hot here.  I know, I know...most of you guys have had the summer from hell, we have been mild and dry.   I am working with a couple of girls and they are bound to call today.  I have to rest alot.  I have to accept alot.  That's always been the key..the willingness to accept what is happening to me....find much greater peace and a much lower blood presssure.  Just rambling guys....feels great that I can do it with you....love to all, and to all I love....LEE

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Comments

  1. feisty

    You have an amazing attitude. I appreciate what you wrote about your daughters. I've been one their end of it, and I was fortunate to have my Mom by my side, but I never once thought about how she might have felt about my actions. I knew at the time it was probably the best thing for me as I was so, so young, but now, at 35 , my husband and I wonder if maybe we made a mistake. I was diagnosed 7 years ago and I wonder if I should even attempt to bring a child into my mess. How long could I hold and care for a baby? Thanks for giving me your ear. I'm going to have a chat with my Mom.


    feisty

  2. heather1

    Your spirit and acceptance is amazing.....and by the way you are not whinning.... you are voicing your feelings...that is what this is for and what we are here for...

    hugs
    heather


    heather1

  3. nancy2

    I HAVE BEEN WAITING TO FIND YOU~I TOO HAVE PROGRESSIVE MS FOR THE LAST 20 YRS. YOU VOICED ONE OF MY FEARS ABOUT WOULD I BE STRONG ENOUGH TO HOLD MY GRANDBABY. ITS SO HARD TO NOT KNOW HOW FAR OR HOW MUCH DAMAGE THE MS WILL CAUSE IN THE FUTURE. MY DR SAID ITS TOO LATE FOR ME TO TAKE THE INJ LIKE AVONEX OR BETASERONE. HAVING A 18YR OLD DAUGHTER I KNOW IT WILL BE HER CHOICE IF IT HAPPENS. I ADMIRE YOUR WONDERFUL ATTITUDE!


    nancy2

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