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  • Image of nonislittleangel

    About Me

    Self employed-divorced-children

    Interests

    Getting Better, and Living Life Without Pain

  • Recent Activity

    Sunday

    Friday

  • Journal

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  • Hugbook

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    • Hug

      From net Sunday

      thankyou for your advice on the NTI splint very much appreciated

    • Hug

      From shakysara Friday

      OHSU lost their funding for their movement disorder clinic and were unable to contiue to treat patients unless they brought their own botox with them. I found a very good neurologist near my home who could treat me. OHSU is not next door since I don't live in the Boise area. I live near the Canadian Border and had to go to Spokeane to fly to Portland. I would fly in and home on the same day. It was exhausting. The experiences there for three years were all positive even though I was treated by neuro residents under the supervision of an experienced neurologist.

    • I’m With You

      From shakysara Thursday

      I know OHSU well. I used to fly there every 3 months to get treated. I have relatives in both Portland and Eugene. I am thinking about renting out my house here and buying one in Oregon.

    • Flower

      From DEBALA Thursday

      Darn, I just red your profile! You have been roughed up to say the least! Hope you have a low pain day. That weather up there must be awful for CP. God Bless, Deb

    • Celebrate

      From DEBALA Thursday

      I remember my phone call as well, it had been soo long, I kept asking my atty "really"? I am sooo HAPY for you. I know how brutal it is ! Thank God for the Social Security Admm in reality I guess I would be liiving down at the 'SALLY" sALVATION aRMY! aGAIN oops Congratulations !!! Deb

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  • Support Groups

    • Close Chronic Pain

      Had billateral mandibular advancement two years ago. Jaw was brought out too far on one side causing a non boney union, tmj, numbness, muscle spasms in head, neck, and eyes. Also Caused small partial seizures, and loss of feeling in lower right quadrent of lips, gums, and chin. Caused TMJ so severe that I have no cartilage left in either side. It is scrapping bone to bone. My left jaw now appears to be caving in, collapsing.

      Treatments

      Oxycodone Working / Worked
      Just had to up the does because my condition is actually getting worse.
      Chiropractic Adjustment Not Working
      was referred by family doctor to chiropractor. Chiropractor told me to expect 80% of my symptoms to go away. Over $1000.00 later there was no relief.
      Cymbalta Working / Worked
      As a seritonin enabler. Not covered by my insurance company. Not taking any more. 20% relief.
      Flexeril Not Working
      don't use any more
      Hydrocodone Working / Worked
      Was on for two years gave me 50% relief doctor switched me to something else because he said 2 years was to long.
      Lyrica Not Working
      One of those gave it a try, but it didn't help me drugs.
      Marijuana Working / Worked
      Helps with muscle spasms.
      Methadone Not Working
      Also had awfull side affects.
      Nerve Blocks Considering
      doctor is refering to spine clinic now
      Neurontin Working / Worked
      slow increase has worked to avoid side affects
      Oxycodone Working / Worked
      Helps for about 3 hrs. with 40% relief.
      Physical Therapy Somewhat Helpful
      only momentarily
      TENS Somewhat Helpful
      temporary and expensive
    • Close TMJ

      www.chronicpainbyme@zoomshare.com

    • Open Post-Traumatic Stress Disorder

      was just told that the reason that I wake from dreams of someone hurting me and in pain is because I suffer from this

      Treatments

      Psychotherapy Working / Worked
      doen't help
      Ativan Working / Worked
      Helps to sleep through the night at 4 mg but hard to function the next day at that strength.
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