annieagain's Journal

I finished the solumedrol today in Miluwaukee.  I got a new DX of TN I had thought all along I was crazy with all of this facial pain.  He increased the Topamax dose I am still dizzy though and most of the fog has lifted so far.  He increased the requip to 200 mg because slicing a 100 tablet in two was too hard to to one day would take 175 or 166 then 125 or 133  never any consciency on that one and he added a tapered dose of oral steroids.    Then he finally added something for the fatigue: Amanitadine I am excited about this one and yes another one vesacare for bad pipes so I can go to the Zoo any time I want to just like the commercial.   I have been trying to follow the Swank Diet I have not cheated yet even though the doctor winked and said it never hurts to cheat a little once in awhile.   I am still trying to understand all of the rules but I know no red meat is one of them,  it is the amount of fat I need to allow that I am having trouble with I need a good chart to follow. 

I got to my infusion treatment today by my former son-in-law's wife offered to take me to the treatment she was so kind and sweet and she even bought me lunch I was going to do it I had a nice time today and she kept asking if there was anything they could do to help Lyn out because they really what her and her son to build a good relationship.   It was so cool today I went with her to pick up the boys from school and my grandson saw me sitting in the truck and he was all smiles.

Now my car is not doing too well thought it was a few things but now it is back at my apartment my former son-in-law and a friend of his got it back here tonight and I am going to call a man here in town to come and look at it.   I guess I am blessed with family all around, my daughter has never answered the phone or called back but I have decided to lay back a little help if I can but not go out of my way.  Be there for grandchildren and my two little ones of my own little ones? Teenagers I mean.  

And the big thing concentrate on feeling better!  I do not know what my disease being active means I am afraid to look it up I feel pretty good and after all these steroids I do feel good I am walking pretty good and my back feels so much better, I am optimistic about the tysarbi, I am going to grab onto all opportunities given me and win the battle.  And guess what???  I have a date Saturday night and Sunday morning.  He had been so kind and sweet to talk to over the last few months and we are just going to talk and I hope go to antique shop that I like here in Zion, and nice dinner, a nice breakfast and maybe ice cream. I am looking forward to a nice relaxing weekend and maybe even wearing a dress.   I bought wind chimes tonight just to hear them blow in the wind.  I am going on with my life.