Started Topamax last night, headaches …
Started Topamax last night, headaches already better. But now body really achy and tired, hope it will pass. Hope mood …
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The last two days I have had episodes where I could not walk it started when I went to therapy yesterday I was so weak I had starred the topamax increase to 100 mg two nights prior and I woke up extremely off balance and feeling out of sorts I needed a wheel chair to make it to the therapy session. I was feeling alright just a little off center. I went to pharmacy to get the replacement drug for Immitrex and it was Tramadol something I cannot take it just makes my heart race and I just get this high feeling and the pain never goes away, I hate this drug. I the headaches are different and I think it will be better to address them with the neuro next week when I see him during the Tysarbi infusion session. I took 2nights of the 100 mg of topamax then last night I took only 75mgs before bed. I feel like I have a permanent cloud hovering around my head and a constanst sinus type headache. Well Thursday I could not walk out of Walgreen's I just wanted to be left alone and let me walk it my way but no everyone wanted to act like super hero and help me and I just wanted to scream "GO AWAY" I know they just wanted to help me and I did not yell at anyone should have but I ended up on the ground because I could noe stand or walk another step my leg would not work at all! The same thing happened today at Alodi's a grocery that I had made it through and had did fairly well then poof! I could barely meke it at all! It was scary. Am I getting worse? Is it the fact that I am not taking any dieace modifying drug now. Or that I just cannot manage to eat much food or get a good night's sleep. All I am taking is LDN and I was feeling pretty good untill I started the 4 pills of topamax and all of these stupid headaches. My new glasses do not work at all now it is so strange my vision changes all the time and my headaches are horrid. and I do not want to eat but I have bought some shakes and fruit to help me and they are which is good. I have read about using antioxidiants to aide recovervy from a flare-up I have bought some of those supplements to try and my nuero has suggested using antioxidants when I feel a flare up and a cold coming on so I am trying it still scared of the Tysarbi. I do know I am getting worse so maybe the tysabari is the right answer. I just so not know
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Aww...i will be praying for you. IT sounds like you are having a really hard time. You never know tysabri might do you some good. Make sure you talk to that neuro about those headaches! Headaches drive me bananas! Keep eating though! you gotta stay strong! Good luck hun have a better day
Joeyrose1107
i dont know hon..talk to your neuro.. perhaps it is the new migarne med...perhaps it is the ldn..perhaps it is the side effects of the topamax on you..who knows...sigh..you started everything right about the same time..it is going to be hard to figure out which drug is having the effect on you..sigh.. i only know that the topamax never has the walking effect on me... the loss of appittae ..yes...the foggines ..yes...i warned you about that... but usually around a 300mg dose...and it goes away...i am on 300mg a day....usually at the 100mg dose..i would assume you are still using the small white 25mg tablets....not the 100mg tablets... there are little side effects as you can spread them throughout the day....hmmmmm...definately talk to your neuro about the mixing of the ldn and tysbira perhaps??? or perhaps the new migrane med???
hugs
heather
heather1