pkukid's Journal

I'm going to say I'm doing  better... usually when I say that something happens so I try not to say it but I'm breathing a little better since upping my symbicort from the 80 to the 160... who knew it's make such a difference. I'm debating the allergy shots but am leaning toward doing them just because I'm sick and tired of sitting inside my house and watching life pass by while I sit and act as spectator rather than participant in life. I've decided to try really hard not to feel so sorry for myself because my asthma amd allergies are manageable and controllable so why should I sitt around missing out on my life and acting like they're not manageable or controllable. I'm tired of being fat so I've decided I'm going to start by doing pre -exercise inhaler and I plan to go and do until I absolutely can't do anymore!!!! My goal is to lose 20 lbs. byt just so I don't get discouraged I'm not going to set a time frame I'm just going to do what I can do. For me it's not what I eat but it's all about exercising consistantly, which I haven't been able to do in at least a couple of years.

     I haven't made any decisions about my PKU diet yet because they haven't told me yet if I responded to the kuvan... I'm really leaning toward eating a little meat(chicken and/or fish) regardless of wheather or not I respond to the kuvan. I'm just tired of being sooooo overweight and not being able to do anything about it.. I think that there's no one who has been overweight starting the PKU diet and able to lose weight while on it. Everything I've trie dhas failed... I can't do any of the popular diet things because of my restricted diet so these aren't options for me now. I'm thinking that I may just quit the PKU diet because the damage that was done is permenant and irreversible so I can't really see much benefit in staying on the diet and staying overweight and paying the ungodly high prices for the low protien food so I'm debating this issue also... I feel like I think much more than the avergage person maybe because I have so much more to think about... serious things like how to control my asthma and allergies and if I should stay off the PKU diet... normal people are thinking where to go for lunch , how to succeed at work.... I don't worry about these kinds of things. I'm more focused on how to survive and live my life...