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  • Image of mikeh

    About Me

    Used to be an active guy always boating on the Columbia or Willamette Rivers-camping there with the boat tagging along, of course fishing, back packing, snow and water skiing (I was a good snow skier if I do say so-was on skis since 7yrs old & that is why I went off to Colorado for college, photography, fictional writing, and some poetry, golf, and lastly but not limited to a little tennis. I would try most things once, if only for the experience. I am unable to use my hand to write but I can still type but not very well, it just takes longer than before. As for content I wasn’t very good though I do have my moments there just needs to be more of them. That’s Ok, because I write for personal satisfaction. If I write for me it really dosen't matter what the book turns out like. Well...I can still physically type but the two things I miss the most are boating and dancing. Boating due to finances (the last 25 years I have never been with out a boat) and dancing because I'll fall on my face...LOL. Want to dance with me. That’s me in a nut shell. I rarely get angry, irritated yes, or an ass to anyone ever; that’s no way to live life, or to treat others. Everyone deserves respect, I mean everyone!, until they show me different. Oh, there is also this guy named………God, though I am not a 'go to church every week person.

    Interests

    Camping, boating, Skiing-water and snow., 4x4, backpacking, fictional writing, a little poetry, & golf though I haven't tried to swing a club in yrs. I can only write now but the MS has effected my concentration and typing abilities. I wasn't very good before but now I realy suck at it but it's enjoyable for me.

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  • Journal

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    • Things to be Greatfull For

      Mood July 4, 2008 4:31pm

      ;                                                            

       

       

       

      Hi,

      I just received a inquiry regarding my Gamma Knife Surgery I had in April. A week ago I would have given a completely different answer. I am so thankful she asked this day and not a few days ago.

       

      I still have pain but not like it used to be. I no longer fear TN. to the extent I did previously which is an major relief in my life. This has been a fantastic few weeks in my life.

       

      I am at last beginning to receive the benefits of having this surgery preformed so I thought I should put it in a journal entry so everyone would know.

       

      Two days after the surgery I was in heaven; After two long years I was able to brush my upper right teeth but that turned out to be fleeting. Pain returned a few day later as if it had never left. My disappointment was extreme. A few month went by before received any results.

       

      I still get the TN twinges and some very bad pain at times but only a couple times a week and not at a level of 10. It has not gone above a 7 but pain levels are relative. What are we comparing it to? It used to drop me to my knees to where I wouldn’t dare move or speak, touch a mustache hair, scratch, and at times comb my hair, take a shower, or let wind hit my face. No more. I see the end of living with pain in sight.

       

      I do not like the side effects that GK crated but, the benefits far outweigh the side effects. I still require pain meds but not as much. I actually sense the point in which I will no longer need them. When? Who knows. The pain level is no where near what it used to be and I don’t feel like a freak anymore.

       

      I still snivel about the pain but, I didn’t realize how lucky I am until I received that inquiry this morning, thanks ibflee. She is a member here and a perfect example how we can learn things about ourselves from questions put to us from people who pop into our lives if only for a moment. Bing….the light in our mind turns on. This light just happened to turn on really bright for me and I have her to thank. That moment can last a lifetime.

       

      The severe TN pain may return but one thing I do know is that the physical pain has reduced in my life. Fear TN enables other fear and I no longer have that fear!

       

      THANK YOU  ibflee !!!!!!!!!

      I will take your name off if you want me to.

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    • Hug

      From Calamitybb Today

      Hey are you guys getting any of this sun? It's nice and it's not too hot here. Hope you have a great weekend! Peace~

    • Hug

      From Sunflur Yesterday

      LOL!!!!! I think I understood that! hehe! Hope you're doin real groovy my special friend (no, not short-bus special)! Gawd, I haven't used that word in years! I wanted to be a flower child, but was too young at the time! Love, Peace and hugs and hugs and hugs.............(no such thing as too many of those either)

    • Good Luck

      From ibflee Yesterday

      check out my journal on free or discounted meds. your pharmaceutical provider may be listed in there. the formatting somehow got changed, but you can copy and paste it into a word doc and then use the search feature to find what you are looking for. H&H!

    • Hug

      From Sunflur Yesterday

      Ah, but peace is such an awesome thing! And love? It makes the world hold together. Both thins that I have craved for so long. Maybe that's why I appreciate and want to spread both. And yes Mike, you'd be surprised how often I'm called the "hippy chick" even at 51! LOL! Love, Peace and Hugs and Hugs

    • Hug

      From olelady Wednesday

      I'm LMAO, because I do not even know that song!! ;o) I'm familiar with the philosophy, which I try to have.. I just want to say, though, that is it hard to know how much one can take without focusing "too much." I'm not there yet, and hope I never arrive. My mom focuses too much, but it is the untreatable depression that is doing it. I've had bouts of depression where I felt so sorry for myself, that it was truely pitiful! Anyway, thanks for writing and your comments.. Take care, please!! Clare

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  • Goals

    Goal Completed on Jan 9, 08
  • Support Groups

    • Close Multiple Sclerosis (MS)
      Type: Progressive Relapsing MS

      10yrs-Complications:Lost job,house,boat in 06 but only assets. Blessed with intangibles in famly&friends.Unfortunately romance is on a distant horizon. Main probs are TN pain,fatigue,cognitive,right leg,balence,left foot5/08(recent),optic neuritis Dec o6,rt hnd pain 5/03,&no sleep. TN is the worst & has put me in a position of wondering which direction to turn;lost is a more accurate term. I will always have God and Hope on my side. Just got SSD aprv 6-21-08.Great B-day present.

      Treatments

      Avonex Working / Worked
      Just took my first shot a few days ago. It beats you up for about a day (flu symp). Wish the length of the needle was shorter; makes me reluctant to stab myself.
      Copaxone Not Working
      Had to stop due to shortness of breath. It got scary at times after taking the shot.
      Cymbalta Not Working
      Weird thoughts, dreams, and physical feeling-can not put to words.
      Neurontin Not Working
      As if taking sugar pills.
      Oxycodone Somewhat Helpful
      Not taking now but it did seem to take the bite off the TN. Doc put me on Holiday because of chasing the pain-found that doesn't work.Do not have prob stopping.
      Prednisone Somewhat Helpful
      When I feel a flare coming on I receive an intravenous zap which definitely helps.
      Valium Working / Worked
      Lessons fear of TN attack.
    • Close Trigeminal Neuralgia

      At first I thought I had a problem with a tooth; this was 3+ years ago. Since Jan 06 I hav been unable to work due to TN and fatugue. I hope the gamma knife works.

      Treatments

      Gamma Knife Somewhat Helpful
      Miraculous outcome though I still have pain on a regular basis but I don’t have as many trigger points and the pain level has decreased after only a week. Thank God. He must have been holding my hand through the surgery. There are no words for the relief I feel.
      Nerve Blocks Not Working
      most of them had bad side effects.
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