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  • Image of levismum

    About Me

    a 22 year old mother with a 2 yr old son with spastic quadriplegia and a 6 month old daughter my sons name is levi and my daughters name is izzabella we live in hervey bay queensland australia

    Interests

    being a mum

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • Journal Entry for August 14, 2007

      Mood August 14, 2007 7:06am

      well its been a while since i have written a entry but last night was one of the most horrible nights ever. levi had a seizure but a very bad one it …
    • Journal Entry for May 5, 2007

      Mood May 5, 2007 9:27pm

      levi had another seizure on monday morn felt so bad for we didnt know he was havimg one untill we went and checked on him so we have no idea how long …
    • Journal Entry for April 26, 2007

      Mood April 26, 2007 6:07pm

      well saw doc yesterday levi will be getting a eeg on wednesday not looking forward to the 3 and a half hour drive with a new born though. upped the …
    • Journal Entry for April 25, 2007

      Mood April 25, 2007 6:52pm

      we have a doc appointment this arvo to dicuss some tests for levi he took 2 seizures in the last fortnight shortly after starting baclofen. i have so …

    Read Journal

  • Hugbook

    Give levismum a hug

    • I’m With You

      From aliciaellington June 6

    • I’m With You

      From wond April 10

      Thought i'd stop by and say hello. Wanted to let you know the road ahead for you will be busy and full of learning experience. Also, wanted to remind you, that you are your own best teacher. My son is now 12yrs w/cerebral palsy and quad w/extreme spastic. I'm here if you wanna just chat or ask questions..

    • Hug

      From cottonball4 October 3, 2007

      Hugs

    • Hug

      From TreMom August 15, 2007

      hugs to have a better day

    • I’m With You

      From chiclola August 12, 2007

      hi. im danielle and ive had seizures since i was 6. though mine r due to light are quite different then your sons. what i can tell u is this.when i go into a seizure, i want to cry out for help, but a part of the body/brain wont let me. when i go into a seizure it lasts about 5 min. mine is a grandmal seizure, but when i go into one, your body goes numb. like a black widow just bit u and your paralyzed. thats what it feels like. i dont feel anything and i black out. i wake up and im in a daze. dont know where i am, whos surrounded by me...but eventually, i come out of it. if any of this help u at all, glad to help. if not im sorry.

    Read Hugbook

  • Support Groups

    • Close Cerebral Palsy

      levi was born 9 days overdue. and due to a really hard labour he was born a stillborn he was brought back to life and suffered brain damage which resulted in cerebral palsy spastic quadriplegia.

      Treatments

      Botulin Toxin Considering
      Baclofen Somewhat Helpful
      Physical Therapy Working / Worked
      Occupational Therapy Somewhat Helpful
      Massage Working / Worked
      i am massaging levi 2 to 3 times a day and this is working well he is able to move a lot better
      Speech Therapy Somewhat Helpful
    • Close Epilepsy & Seizures

      my son levi is 2 and a half and has cerebral palsy and just been told he also has epilepsy about 3 months ago he had seizures when he was first born but no more for 2 and a bit years untill one night in april he took his first.

      Treatments

      Depakote Not Working
      Keppra Too Soon to Tell
      Lamictal Not Working
      increased seizures
      Tegretol Not Working
    • Open Parenting Newborns & Infants (0-1)

      i have a 5 month old baby girl her name is izzabella enez i also have a 2 and a half boy levi

  • Friends

  • Snapshot

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